Link to Audio, video, powerpoint and trans... - Ramsays Disease

Ramsays Disease

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Link to Audio, video, powerpoint and transcript of Dr Alastair Miller's lecture on ME/CFS on May 5th

MrsSowester profile image
16 Replies

Hi all,

This seems to be a good indicator of current NHS thinking re. ME.

Probably most helpful for those newly diagnosed and for friends, family etc who are interested. It's not too tricky to follow and 48mins long.

The transcript doesn't seem to be a complete record - more lecture notes.

gresham.ac.uk/lectures-and-...

There's another lecture tomorrow by Prof. Julia Newton - I'll post link to that when the recording is uploaded in a few weeks time.

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MrsSowester profile image
MrsSowester
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16 Replies
slowmotion profile image
slowmotion

Thanks for sharing head full of cotton wool now tomorrow a catch up day.

Ian123 profile image
Ian123

The lecture notes are quite basic but guessing what we have learned is not so obvious for students as an introduction.

Look forward to the next lecture with interest.

Hermes33 profile image
Hermes33 in reply toIan123

Dear Mr. Alastair Miller

I read your comments about ME / CFS and the PACE trials, which I found very interesting. From a scientific & medical perspective and legal perspective, the following needs to be communicated to all doctors and medical professionals.

A scientific analysis of the PACE trial - me-ireland.com/bogus.htm#pace

The documented harms caused by exercise and exertion in cases of ME and CFS - me-ireland.com/scientific/1...

Scientific and medical evidence - me-ireland.com/scientific.htm

The legal implications for doctors and medical professionals - me-ireland.com/bogus.htm

Ian123 profile image
Ian123 in reply toHermes33

All good could not open the scientific and medical evidence link.

Hermes33 profile image
Hermes33 in reply toIan123

Scientific and medical evidence - me-ireland.com/scientific.htm

Ian123 profile image
Ian123 in reply toHermes33

Thanks for sharing will catch up with all of this later.

Stormchaser profile image
Stormchaser

Perched on the fence between psychological / physical declaration of support from a politician IOM shaking opinions up with a clunky new name.

Ian123 profile image
Ian123

Catch up on the next lecture gresham.ac.uk/lectures-and-...

Seascape profile image
Seascape in reply toIan123

Spreading informed opinion thanks.

Ian123 profile image
Ian123 in reply toSeascape

Spreads some hope that a better future than past is possible.

MrsSowester profile image
MrsSowester in reply toIan123

This Julia Newton one looks really good - looking forward to the audio, much easier for me than trying to digest text.

Ian123 profile image
Ian123 in reply toMrsSowester

Audio with my eyes shut is easiest for me also as pictures are a distraction when processing information.

RockRose profile image
RockRose in reply toMrsSowester

Curiously, I experience similar, MrsSowester, audio far easier than visual, due to cognitive effects rapidly triggering with screens.

RockRose profile image
RockRose in reply toIan123

Thanks so much for sharing, Ian, building on Mrs Sowester's interesting post.

Feels Incredible work being done at Newcastle...amazing how they found a way to lab test muscles, to get objective tests...and comparison with controls.

Also significant, how 1/3 of the cases had 'sub clinical cardiomyopathy' (- as a non-physician, I'm not precisely sure what that indicates, yet heart feels absolutely relevant).

I like Prof Newton's commitment and awareness of the need to translate from lab to genuine cure...and her true investigative aproach, aware that the issues maybe 'upstream' or 'downstream' in the body.

Quietly encouraged by her credibility and voicing of the importance to continue. Thanks again, Ian :-)

Ian123 profile image
Ian123 in reply toRockRose

A link with sound or video gresham.ac.uk/lectures-and-...

Hermes33 profile image
Hermes33

Dear Mr. Alastair Miller

I read your comments about ME / CFS and the PACE trials, which I found very interesting. From a scientific & medical perspective and legal perspective, the following needs to be communicated to all doctors and medical professionals.

A scientific analysis of the PACE trial - me-ireland.com/bogus.htm#pace

The documented harms caused by exercise and exertion in cases of ME and CFS - me-ireland.com/scientific/1...

Scientific and medical evidence - me-ireland.com/scientific.htm

The legal implications for doctors and medical professionals - me-ireland.com/bogus.htm

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