I am so glad to find people to talk to who understand PSP and what it does to ones family. Reading through some of your posts has given my so much strength......and scared the crap out of me. And made me cry.
Thank you all so much for sharing.
My Dad Stu was diagnosed with PSP about a year and a half ago. I wont lie, it's been hell.I worry about him so much, he was always so strong, so capable, and SOOOOO funny.Now I feel like he is just going to die right in front of me and my kids every time he tries to eat bite of food of walk to the next room with his walker. The worst part is seeing that he is not happy. My Dad hated tv, and now it's his only activity. My Dad also prided himself on his immaturity and never wanted to be an "old fart" or worse yet, "some kind of vegtable". He once confided in me that his biggest fear was needing us to take care of him in his old age. Really he has an unhealthy level of pride. Well, I could go on and on venting, but I don't want to dwell on what we all know, PSP can go to hell.