I am about to ask an unanswerable question...but bare with me please...i may just need to vent a bit.
My dad has psp. he can no longer walk, talk much, see much etc. He was pretty deaf anyway. He sleeps a lot of the time. He coughs and chokes frequently. We had a big scare the other week when he choked badly..but luckily there was a nurse about.
At his last consultation they suggested a PEG tube.
My dad is in denial. When he can communicate he talks about what he will do when he's better. When he's beaten this.
If my dad thinks he is going to get better then surely the idea of a peg is a no brainer....of course you would get it!
But i'm worried. would he chose this if he knew it would just prolong his life....with possibly no quality to speak of? food is one of his last pleasures. He loves a wine or an icecream or curry.
I'm so scared.
I don;t want him to be trapped in a body that will not respond to him in any way, unable to access any of the things he once enjoyed so much..but how can i talk to him about this?
I feel llike a monster as i don;t want to keep my dad alive just so he's alive. if it was up to me i'd say don;t take it. i'd let him go when his body gave up. Maybe i'm just projecting what i would want to do if i was in his situation? I feel so guilty.
could some one share with me what happens if you have a PEG. How long (in your individual experience) do people last with a peg? do they end up trapped in an uresponsive body....alive, but not living?
If he wants a PEG, of course he will get one.
Has anyone had experience of having both a peg and a colostomy bag? I feel that it would be awful to have one food pumping food in to your belly and another draining out your waste.
I'm very scared of what the future holds for him.
I would just like some peoples experiences and views.