PSP, Stroke and Pneumonia. Is Peg tube an ... - PSP Association

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PSP, Stroke and Pneumonia. Is Peg tube an option?

vikasmahajan24 profile image
8 Replies

Dad went to hospital with lots of hallucinations. He was also diagnosed with stroke. He also has pneumonia. I am considering getting peg tube in his situation. Any pro's and con's of peg tube. Any other suggestion on what food can help to regain strength until tube is not put? Thanks for suggestions in advance.

8 Replies

Personally l was not given any information when mom had PSP, so l only know what l have read from others on this forum. At the top of this page you will see RELATED POST for older post about peg tube. I hope this helps you in your search for infomation. Sending hugs... Granni B

Javan profile image
Javan

The peg allows you to ensure that medication and enough feed/fluid is received . This has kept the old bag healthy and away from hospitals,allowing us to have a better life.

enjoysalud profile image
enjoysalud

How old is your dad and does he want a PEG?

kenh1 profile image
kenh1

My wife was given an ng tube. Less invasive than a peg.

THat was 2016 she is still with us today. With peg feed you get all the vitamins and medication required.

Without it She would have died then, she is still with us today.

'Quality of life? Big question.

For me and my family we have no regrets. Others choose the opposite route. There is no way I am going to condemn them.

Confusedandlost profile image
Confusedandlost

I am 70 years old and have CBD. If the time comes when it is recommended that I need a peg tube I would like to make that decision myself. If my condition at that time means I am unable to make that decision I have let it be known that I would not want a peg tube.

It's always going to be very difficult if you have to make a decision for someone else and quality of life in my opinion should be factored in, in any decision making. A difficult time ahead for everyone.

With best wishes to you and your dad.

To be honest, my brother did not want a peg as he no longer wanted to live the living hell that is PSP. (7 years was enough).

Check with your dad that it's what he wants and then fight for him.

As hard as it was for me to watch him, it was harder for my brother to live it but it was his final choice and the only control he had once PSP took hold.

Love to all going through the tough journey.

Sue x

PSomani profile image
PSomani

Hi Vikas,

Tend to agree with the others . It’s a individual / caregivers decision after evaluating quality of life , infrastructure at home to manage , present condition including mobility , and understand the possible future complications of PeG wrt repeat placements , hygiene / keeping infection free etc.

We stay in India and got one for our mom about 1.5 years ago - purely for the reason we could not see her starve the whole day. Since beyond a point no medicines also can be swallowed and you don’t have injectable Neuro meds in every country .

All the best as you and the family cope with this.

Anshuman

mjtogether profile image
mjtogether

As a caregiver, that is such a hard decision. I told my husband "we will do that; get a peg tube" when the time comes. He said, "no, not what I want. Chances are there will be more things wrong with me then just not being able to eat. I don't want to eat to just exist" So when, if, the time comes he can no longer eat and if there are other comorbid conditions, I will honor his decision; as painfully difficult it may be.

We as caregivers try to do what's best; I am glad my husband made that difficult decision for me.

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