Hello, I’ve just joined this board. I don’t expect easy answers, but just wanted somewhere where people know what it’s like.
My father has PSP & my mother is his carer (with assistance a couple of times per day). He’s currently in hospital recovering from pneumonia, had a nasal feeding tube fitted a couple of days but pulled it out today. Chokes when he eats. The hospital recommend a PEG, and don’t think he’ll be well/mobile enough to get out of bed again.
He finds it very hard to speak, but he can still understand, so the fitting of a tube is his decision.
I live a couple of hours away, so visit for a weekend when I can, but otherwise keep in touch by phone. I feel helpless not being there, but there really isn’t much I could do in any case.
Thanks for letting me vent a little.