Walking, beside you, in the twilight.
The glorious splendour of a fiery sun a fading memory.
Time passes.
You're still there - I know you are.
It's just harder to see you
In the shadows that deepen and shift.
Moving forwards.
Towards the still, cool peace of night.
Hold my hand.
I don't want to lose you.
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Jump to repliesKathy that says it all. Your poem deeply moved me.
so many thoughts going through my mind yet i am at a loss for words.
Love to you both xxLinda
x thank you Kathy.
Kathy .. yes indeed those words do say it all ...
you feel that the person you once talked with, walked with, laugh with is disappearing before your eyes, I used to look into my mother's eyes, after she got PSP and think to myself, oh please mam tell me how you feel, what you are thinking .. I felt so helpless, and robbed of my mother whom I had wonderful conversations with all my life.
My mother passed away in February this year, but it was as if I had lost her long before that. Take care.
Bob x
You poem is truly wonderful. As someone who has PSP it is difficult sometimes to remember what it felt like to be "normal" especially when I fall over or drop my food down my jumper or am having a brain fade day when everthing I try to say just comes out as jibberish! Looking back I can see just how much I took for granted my health and my ability to walk - something which I long to do but now cannot contemplate because my legs dont cooperate. I do try to keep positive mainly for my dear husband's sake who I know is hurting just as much as me but cannot put it into words for fear of dampening my positive attitude. love to all SueW xxx
Hi Kathy
Your words are so explicit and truly explain how PSP makes me feel. I have said many times to family and friends, it is almost like grieving for someone while they are still alive. The person we once knew is fading away before us and there is absolutely nothing we can do to prevent it.
Such a clever expression of how it feels. Thank you for sharing.
Take care....................SuzieQ xx
Kathy,
Thank you -- your poem brought tears to my eyes. I love my Dad and watching him fade away is so sad. But the memories and the moments when he understands and blows kisses are so wonderful.
To all of us with loved ones and those of you who suffer with PSP -- your courage and love is an inspiration.
Hugs
DeeDee
Kathy, you have summed up the hardest thing about PSP. I know my mum is in there somewhere, but we cannot reach each other. It is like there is a thick glass between us. I often think that she just drifted away from me, without me realising until it was too late.
Sitting here with tears in my eyes reading your poem, but I wanted to say thank you Kathy - your poem is truly amazing - it captures so very much.
Fiona
Final Journey
The end of my father's PSP journey.
Kathy is near the end of her PSP journey
Our Dad's journey 
Her journey is over...💔💔
