Hi Everyone, newbie here. My dad was diagnosed with PSP in March this year, and my mum and I are kind of muddling through so far. We're in England (Staffs). My dad starting falling about 10 years ago, and now his symptoms are quite advanced. Diagnosis took forever, and was a real battle. Eventually, I printed a list of symptoms from a PSP info page and took them to the third consultant neurologist and said, here, this is what I think my dad's got. He just said, yes I think so too and sent us to a Parkinson's nurse, who, he said, knew a lot more than he did. Is this really how it should have been? From what I gather, my dad's progression isn't exactly typical, as he's had symptoms for so many years. Advice and information on what to expect has been few and far between. We're now in the process of making alterations to their house, wet room, through the floor lift, etc. Would be so nice to talk to others. My mum feels very lonely, and unfortunately doesn't use a computer, so I can relay any info to her this way.
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