We want to develop the PSPA Support Group network accross the UK and are keen to hear from people who would interested in running a group.

[PSPA_CameronW]

The aim is to have local groups that meet regularly which not only provide support, but also give opportunities for individuals to get involved in a wide range of activities that will make a difference to the lives of those affected by PSP/CBD at a local level. If anyone is interested please get in touch.

[SuzieQ]

It would be great if a support group network could be developed and would be much appreciated by us carers. Sadly however, as you are obviously very aware, caring for someone with PSP/CBD is more than a full-time occupation and although I would love to get involved there are never enough hours in the day for me to get involved in running a group. May be one day.....................

SuzieQ

[hmfsli]

Cameron, please get in touch as I would like to know more about what is required when running a group.

[PSPA_CameronW]

Many thanks for your message. Can you let me have your contact details in a private message so I can call you, or give me a call on 01327 356130 and we can have a chat. Look forward to hearing from you. Cameron

[AmyT]

I would be interested in running a group...Im based in North Somerset. Amy T.

[anniemay in reply to AmyT]

Hi, did you get any response to your interest in running a group? We are in Frome, but would be prepared to travel to a support group. My husband has had PSP for 8 years, first 4 of those diagnosed as Parkinsons. Now he is still wobbling about, great appetite for food, off all medication as there is no significant difference with/without it, except no side effects! Feel we could benefit and give benefit to other sufferers!

regards, Ann

[iris2]

I would like more information about setting up and running a local group in Kent,please can you let me have more details. Also would like to hear from people in kent who are carers for loved omes with PSP

[susangillies in reply to iris2]

I have got PSP and my husband cares for me. I read with interest that you would like to set up a local group in Kent. Kent is a very big county so perhaps you can let me know where you live in Kent. I live in Beckenham. which is a couple of miles from Bromley. My email address is [e-mail], in case it is easier for you to contact me in that way.

With kind regards

Sue.

[PSPA_CameronW in reply to iris2]

Hi Iris. Sorry it has taken so long for me to get back to you.

Can you let me know when would be a good time to call you and let me have your number.

Many thanks

Cameron

[jac001]

Hi can anyone tell me if there is a support group in northern ireland.

[Hidden]

I am interested in running a group in Medway-is there anyone else out there?

[Hidden]

I am still hoping to hear re a Medway group.A few times it has been mentioned that someone would be in touch but I have not heard from anyone. At this rate it will be too late for me as mum is teetering on end stage.

Dianne