PSP Association

7,281 members • 9,889 posts

Death Notice

My husband passed away Monday after a long struggle with PSP. I used to post and got so much kind and loving help from this group. I took care of him a long time at home but after several falls, night after night without sleep, then I could no longer get him in the car for appointments, he has been in a nursing home almost two years. I have been feeding him twice a day, cutting his hair and nails, and shaving him everyday while he was in the nursing home. He hasn’t been able to speak or move his arms and hands for a long time but up until the last week I could make him react to certain phrases. Covid makes all of this more challenging but it will be all right. The photo is our Thanksgiving dinner together.

49 Replies

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So sorry to hear of your loss. My husband passed 3 yrs ago and I cannot imagine how I would have coped with a pandemic while caring for him. I wish the best for you. Take care of yourself now.

I am a nana too. Thanks

I really had to pull strings to even get in the nursing home. Thanks and take care❤️

Sorry you have to join or club. Your story sounds alot like mine. I lost my wife to PSP just three years ago.

The stories all end the same in this club. Thanks

I'm so sorry for your loss. I'm sure it will be sinking in for a while.

Thank you.❤️

Sorry for your loss. Sending you much love and strength at this difficult time x

Thank you.

I am so sorry for your loss. Take good care of yourself now as grief is a difficult journey too. I lost my husband a couple of years ago and am still finding it all so difficult to deal with especially with all the time I spend alone due to the pandemic.Love Sarahxxx

I’m sure , part of my heart went with him.❤️

I think you are probably right but I promise you that once the rawness has passed you will find a new way of coping but it’s hard. The thing to remember is nobody can take your happy memories away from you. Take care and stay in this group as it really helps everyone is so supportive. Sending you lots of love and hugs xxxx

I’m sorry to hear of your news. ❤️

Thanks❤️

A big hug.Luis

Thanks❤️

So very sorry for your loss x

Thanks❤️

Sending you love during this tough time x

Thanks❤️

So sorry for your loss x

Thanks❤️

Thinking of you. xxx

Thanks❤️

Sending big hug and much loveLots of love

Anne

Thanks Heady

What a super gown he has on. A real memory. I am so glad that you were able to be with him. I am so sorry to hear your sad news. My thoughts are with you. Take care and look after yourself now. Love AliBee

Thanks AliBee! For all your help through this. I didn’t always post but got so much good advice.❤️

So very sorry for your loss. Hugs and prayers.

Tim

Thanks daddy. You have been one of my best reads.

So very sorry for your loss. Sending prayers your way.

Thanks. Prayers are needed

Thank you for sharing the photo. Side-by-side as you were in life and especially in his illness. I am now six months from my own husband's passing. There is an emptiness that will never be filled, yes, but such peace and joy in the memory of the life we shared. I wish you the same comforts. Marilyn

Thank you Marilyn. My heart is with you❤️

Thanks for you kind words❤️

Sorry to hear that your husband has passed. The care you gave him even during a pandemic and in a nursing home will help comfort you, knowing your did so much to help him during such a difficult time. May you find peace in the days to come. HUGS!!!!

Thank you so much.❤️

I’m so sorry for your loss of your husband. I lost my beloved husband in December to PSP also. My thoughts and prayers are with you and your family ❤️🙏🏻.

Thank you. ❤️

Hugs to you. X x

Thanks. This disease is so hard.❤️

I am so sorry your husband has passed away. I'm so thankful you got to be with him in the Home during this pandemic, I'm sure it meant a lot to him and you. You have been amazing in your care for him. Now it's time to take care of you, be kind to yourself and just take one day at a time. I lost my husband just over a year ago and still there are times when I get overwhelmed but then I remember what PSP did to him and give thanks he is no longer suffering.

🙏 and sending lots of love,

Nanny857xx

Thank you. I will take your good advice to heart.❤️

I'm so sorry for your loss, PSP is just a horrible illness & so hard now when your life has been devoted to looking after him. My husband has been in a Care home nearly 2 years & is in Advanced stage of PSP. His hands are turned in & he doesn't speak he is losing weight every month & now has a delay sometimes with swallowing food. I visited yesterday morning as get Essential visit in his room once a week for 45mins & his eyes were closed all the time. I managed to trim his nails, but no reaction from him. it's so very sad to see him deterioate. Lockdown has had an impact on him & progression of the illness. Best wishes to you & take time now for yourself.x

What you describe is exactly what I went through. When my husband started loosing weight was last July and I have been allowed to feed him since. He gained his weight back except for the last two weeks. The staff just didn’t have the time needed to spend with him and it did take a long time. He was in the care home one month less than two years . They really didn’t care how long I stayed. They also tested me for Covid twice a week but I just stayed home and was real careful. Have you ever tried feeding him? I also got Him to drink a supplement drink with every meal using a straw that makes the throat muscles stronger even though we had some choking spells. Then I just sit and wait. Will be thinking of you.