My heart goes out to all sufferers and carers who have the added burden of Covid and lock down to contend with. It must be extra tough for many right now.
You can contact their advice line by email on advice@carersuk.orgor by telephone Helpline service 0808 808 7777. Note: their Helpline hours have been extended to 9am to 6pm, Monday to Friday, to help carers access information at this time. They also have an online forum run by carers for carers full of tips and information where carers have been supporting each othercarersuk.org/forum/support-..."
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Kevin_1
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Hi Marion, yes absolutely, however I believe this will be a good couple of years away.......I for one, won’t be going out and behaving as I did prior to covid 19. By that I mean I won’t be going to restaurants or pubs or anywhere basically where there are many people. I don’t believe everyone will be safe until everyone has had a vaccine, so that could in theory be many months if not years away.....that’s not to say if when the rules relax, someone else wants to organise a meet up, but I won’t attend for some time yet. Hope that makes sense and that you and your lovely sister are ok x
I understand Amanda and it makes perfect sense. Praying that scientists and researchers find a vaccine sooner rather than later.
Take care xx
Thinking of you & sending Vertual Hugs across the pond. Your information is always so helpful & appreciated. Words sometimes fail me but l will say U R Loved & Liz will be in my heart always. Take care, rest, eat healthy and make a small target to throw spoons at (saftey first-be mindful of cat). Sending hugs... Granni B
When it's safe a meet up and seeing you again would be wonderful.
Thank you for your kind words. I am looking after myself fairly well. This forum is such an understanding place it feels OK.
Suddenly I am the student again and should I struggle I shall most definitely reach out to others here who have trod this new path I am now on. There are so many caring, wise and experienced folk here and I count you as one. But truth be told there are more than my fingers and toes put together so I must just say that they are countless.
Hugs to you
xx
PS - I am prone not to nurture my body at these times. A common thing with grieving and loss. So I make a point of making food, spending time cooking 'for me' Not easy to do at times, but a good way of nurturing the heat too.
Dear Kevin, your compassion towards this community is unending despite what you are going through at the moment. I have never met anyone who is selfless to the core. I salute you but also want you to take time to make sense of your own personal circumstance. Please put yourself first for just a while.
Your words are born of understanding and I hear you very clearly.
Thank you for stepping forward and speaking. I know it is from much experience and concern.
I am taking time regularly through the day to grieve. I habitually practice a constant checking and processing of my thoughts and feelings. A habit borne of the therapy work I used to do.
I let those feelings of loss and sadness come to the fore, as well as the tearfullness and I sit with them many times a day. Accepting them and letting them flow though with the thoughts which attend them.
I also take time to remember the good times and spend a lot of time holding Liz in my heart and just being with her there. Meditating often through the day and being open to what surfaces.
I have a lot of hours in the day and a little time posting here is a release from that. In fact reaching out to others is a healing in itself. Projection being used positively? But, with an awareness of that dynamic. Each post I make being seen and understood as a my need for healing as well. And, a constant checking for avoidance, yet giving myself permission to avoid at times when I need some space from the grieving. Paperwork is good for that!
But, I am not some super being and I have taken your words to heart.
If tears are diamonds we would be rich beyond our wildest dreams.
But in reality we already are as each and every diamond is a treasured memory of our loved one
As a relative newbie to this forum I only joined early last year and only a few months in we had already lost my dad to a very rapid version of PSP. Literally 6 months from unsteady and falling to the end.
Having read so many posts a lot of which were your own you gave such a straightforward explanation that we could all relate to and understand at a time when the world in general and dads illness especially was a very scary space.
As many have said here your strength of character and your love for your beloved Liz always shines through everything you write even now. It gave me such comfort that we were not alone but part of such a huge and loving virtual family.
So thank you for holding my virtual hand during our journey through PSP and hopefully like the rest on this forum now is our time to hold your hand and guide you down this path of grief.
It hits hard at times and then withdraws to a manageable state only to rear its head again at the most strange of times. Totally unexpected. But I quickly learned to ride it out and accept those diamond tears for what they were and indeed still are.
So Kevin. We are here beside you on your journey. Support. Guide. Live and love. We are all in this together. You will never walk alone.
Hi Kevin. Why am I not surprised to find you still posting with support and guidance. Your unselfish and compassionate comments sum you up. You are an amazing person who is loved by so many across this forum. However, PLEASE take care of yourself and allow yourself to grieve for the loss of Liz. I am sure she would want you to do that. You and Liz are still in my prayers and there you will remain.
Glad to see you are still here. I feel so lost at the moment as things get worse but reading your posts makes me feel more connected . Hope you’re able to keep going.jaynexx
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