Richard recently posted about a hard choice for him and his wife. Should she get C. Virus, should they consider using a ventilator if necesary? He had superb replies. I have thought about this for most of the day. The decisions C. Virus forces upon us and the difficulty in making the right decisions, if we have choices at all.
Today I heard that Liz's nursing home have a number of cases, both staff and residents. Liz is still clear, but for how long? Barrier nursing in a home is not so very easy.
Will I be able to visit her should she be at end of days?
I am determined to be there if I am allowed.
Will I catch it... possibly, but in time I will anyway, I think.
Such thoughts!
This must be throwing up major issues for many of us right now.
And there are those who are struggling financially and with reduced care support.
So, I reach out and and send a little love to all.
Kevin
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Kevin_1
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Oh Kevin thinking about you, it’s a sad time for you Kevin, not good to hear that the virus is in the nursing home, but I think it was expected, there as many nursing homes with the virus, praying that Liz does not get it, and praying if she does you will be allowed in. Sending you a big hug Kevin, stay safe and strong. Yvonne xxxxx
I am so sorry to read your news of Liz's home. Just remember that nothing is set in stone. We can only take one day at a time.
I trust you will continue to have hope in such difficult circumstances. May tomorrow bring you better news and the knowledge that you still have a great purpose.
I’m so sorry to hear about Liz’s nursing home. I hope that they will allow you to visit if it comes to that. My wish of course is that a vaccine will be available before more people are exposed. I’ve never in my life experienced anything like this and I feel so naive about it all, but staying isolated from everyone and being safe just the same. I’m “almost” not as lonely as I was before because now people have more time to call or they text me more often. That’s really selfish though, because it means that they are probably not working right now. Everything is just extra difficult!
Kevin, so sorry to learn the virus is in the nursing home. I will be thinking of you and praying Liz will be kept safe at this very difficult and worrying time for you.
Sorry to hear about Liz's nursing home being infected. I can't imagine how frustrated you have to feel . Please know that we are thinking of you both and that this is.
Out of everyone's control
please take 1 day at a time and keep on keeping on .
Dear Kevin, it gives me a real heart ache that you even have to think about this... as if there wasn’t enough grief in the reality of Liz's decline and separation in the care home.
So many tough choices. Just when I decided to go ahead and move John to a care facility, they closed their doors due to the C. virus. So, I still have John home with me. We are doing the best we can, during what seems impossible at times. No one is having it easy these days. The disease is bad enough but adding the virus brings new meaning to the word "challenge". I pray Liz and any others that are in nursing facilities stay healthy as possible.
It’s just what you were dreading that the disease got into the home. You must be so stressed Kevin. Just try and stay strong and fingers crossed Liz does not get it. Xx
Oh Kevin, I am so sorry. Like others, I have no words of comfort for you. To others I say, no matter how hard everything seems, you have to take life one minute at a time. Make the most of your precious time together. None of us know when it's going to be snatched away from us.
Kevin, I hope and pray Liz doesn't get this even more evil disease. Silly comment, I know, but try and keep calm. Keep safe.
Very sorry to hear this Kevin. I think end of life, should it get that far (hopes and prayers it doesn't) is one of the allowable essential exceptions other than hospitals. Which is one at my mum's retirement homes. Think this is also an area up for clarification at government review next week. Sorry, it sounds so clinical.
I know its not the same at all but could you craft a pair of matching hearts of pretty paper/fabric/wool and post one to Liz and keep one yourself to remind yourselves that you/we all will get through this somehow. Maybe spray it with her favourite perfume. Though I know she's constantly on your mind and in your heart anyway.
I so hope you can get in to see Liz soon whatever is her situation - that exclusion is the worst of it. Personally I am not worried about getting the virus (except how it could impact Ruth) as I think we will all get it sometime. But I do so worry about the horrendous social and economic effect this lockdown is doing. Keeping fine here but no alcohol- free days on the horizon!
It must be really tricky having to navigate through this minefield, we all know that PSP/CBD are terminal illnesses but COVID 19 is not what we wish for our vulnerable loved ones. It takes away choices and wishes that have often been made. As you say Richard you need to stay safe for Ruth's sake and it's almost inevitable when lockdown is lifted that the virus will wind its wicked way before they get a chance to develop a vaccine so stay in isolation as long as you can. Get more wine in and enjoy the sunshine.
Love Kate xxx
Thinking of you both at this time of unknowing. Sending hugs to you both... Granni B
Dear Man, this disease is causing all sorts of pain for people. I think it is especially difficult for someone in your situation who has been there for Liz all of this time, to not know if they will be able to be there to hold her hand and talk to her should she succumb to it. I know what you mean about getting the virus at some point but I guess you want to stay well so that you can be there for Liz as She approaches the end of her life.. It's a Catch 22 scenario isn't it.
I'm sooo sorry to hear this Kevin. Your worst fears realized. So glad I made the right decision to bring Trish home from the hospital when I did. No words of comfort my friend... only heartfelt prayers,
So sorry to hear Kevin. Hope and pray she does not get the virus but I am sure if she was at end stages, the Nursing Home would let you be with her. Talk to them now about it as no telling when this virus will be beat . Thoughts are with you both. xxxxxx
For right or wrong I see little point. From the States to the EU they are finding that the testing kits are unreliable.
And, if she has it she does and were it to be a bad cold then she will recover.
The testing kits used early on would have provided good data for tracking the spread and informing policy and the likely demand on resources. Lock down is, I am told, a better form of control.
I have a DNR in place but not ready to use it yet I was hoping I could last the summer.
It is too early to see what affects the virus has on a CBD patient it would be good to know how you come out the other side........... Our Home is working hard to try and not get the virus and at the moment it is succeeding.
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Visitors for people in a nursing home.
Is it time for nursing home care?
Nursing home/end of self-funding/third party top ups..I’m so stressed. 
