At last a Syringe Driver: Mary deteriorated... - PSP Association

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At last a Syringe Driver

Willow_rob profile image
18 Replies

Mary deteriorated over the last 2 weeks and, after persistent nagging, she was fitted with a syringe driver yesterday and is peaceful.

She developed a chest infection and coughing was causing her pain and anxiety. As if this wasn't enough a bout of oral thrush caught us unawares and she had pus coming out of her mouth. At this time I called in the Hospicecare Home Service and they and Marie Curie have supported us at this difficult time.

We knew our time together was limited, initially we thought it would be 2 to 6 months. Mary has been magnificent in her fight and it is now 2 years since PSP was diagnosed.

I am now in the waiting game but I am so proud of her that she never once complained. It has been my priviledge to care for her and be with her . Now I have to let her go. I can do no more. Thank you all for your support. With love from Rob

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Willow_rob profile image
Willow_rob
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18 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Rob thinking of you, you have done an amazing job, for your beautiful lady, stay strong, sending you massive hugs. Yvonne xxxx

doglington profile image
doglington

It's so hard. You have done all you can and I'm glad to hear she is peaceful. Love from Jean xxx

Jimjam22 profile image
Jimjam22

Sending big hugs xx

Time to be the spouse and not the care giver. Let others do the job.

kenh1 profile image
kenh1

Caring for the one you love is a privilege indeed. My thoughts and prayers are with you. Love and peace. Ken.

Dadshelper profile image
Dadshelper

You have done all you can now. It is time to just be with her and let her know you are there. I am glad she is resting peacefully and hospice will be of great help at this time.

Ron

rriddle profile image
rriddle

Thinking of you both, and hoping that Mary's transition is a peaceful one.

RobinR

Hiking13 profile image
Hiking13

Thinking of you at this difficult time. Stay strong for both of you and take good of yourself too as this next stage is very exhausting in a different way.

Lots of love to you both

Sarahxxx

Tippyleaf profile image
Tippyleaf

Dear Rob

Thinking of you both at this difficult time

Sending love to you both

Tippy xxx

Willow_rob profile image
Willow_rob in reply toTippyleaf

Thanks Tippy, how's your Dad coping and have you got funding yet?

georgeg25 profile image
georgeg25

Sending you prayers for peace and strength for this stage. 🙏🙏🙏

Hi Rob - thinking of both of you and sending our love. I think you can both be proud of how you’ve come through this journey. Cathy x

AJK2001 profile image
AJK2001

Thinking of you Rob and wishing you & Mary strength and peace.

xxx

racinlady profile image
racinlady

Sending warm thoughts your way.

Pat

Cinnylou profile image
Cinnylou

Sending thoughts and prayers for a peaceful leg of this final journey.

Cindy

Katiebow profile image
Katiebow

Your post brought the day Ben died right back, he had a syringe driver fitted the day before he died and like you I felt it was a privelidge to have nursed him to the end. My thoughts are with you.

Love Kate xx

Willow_rob profile image
Willow_rob in reply toKatiebow

Thank you ❤️

Nanny857 profile image
Nanny857

Hi Rob, sorry to hear about Mary, will keep you both in my thoughts and prayers. Time to let the professionals take care of her and you can return to being her loving husband.

Lots of love, Nanny857xx

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