Praying for peace without understanding. - PSP Association

PSP Association

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Praying for peace without understanding.

Este profile image


I have followed along on this forum for a couple of years now. You have brought tears to my eyes, a smile on my face and warmth to my heart. I read your posts when Covid kept me from my mom. I learned from you, I struggled with you, and I took notes from you. I found comfort with you.

My mom passed away from PSP on May 6th. Even though we were on this journey for 8+ years, I still wasn't ready to say good bye. My mom never complained about her limitations. She was a warrior. I am thankful that she never had to endure many of the secondary complications of PSP. Progressive as it goes, she just slowly wound down, eating less and less until her departure. Her hospice care was outstanding.

A big thank you to all of you for laying it out there on this forum and letting others know that they are not alone. I took a photo of my mom's hands with mine embraced. I got the idea from someone's post on here who had a plaster cast made of her and her mom's hands. I will always cherish this photo.

Oddly enough, I had to lose my mom to find her again. I was so caught up in over seeing her daily care and somewhat blinded by her limitations that I feel that I forgot the woman, mom, wife and friend that was inside. The clear memories are flooding in now.

Thank you all. You were all my saving grace on this journey.

23 Replies

Este,So sorry for the loss of your dear mother! My heart goes out to you.


Sending big hug and much loveLots of love


Dear Este. At a time like this words are inadequate but just to say our thoughts are with you.

So sorry for your loss, I saw the plaster cast hands too and now you have taken a photo of you and your mum's hands I am off to take one with my wife. Love and hugs

Mamalou59 profile image
Mamalou59 in reply to Zerachiel

can you or anyone send a photo of the plaster cast? I am also wanting to do this as this would be a lasting remembrance of our loved one. Thank you.

Zerachiel profile image
Zerachiel in reply to Mamalou59

It's on this forum,

Mamalou59 profile image
Mamalou59 in reply to Zerachiel

so nice… thank you. Will try this while my husband still can. ❤️

My thoughts are with you

Lovely words sending hugs for your loss x

I'm so sorry for your loss. Thinking of you. X

Just thinking of you at this sad moment and sending you love.

Sending gentle hugs. . . Granni B

Lovely Photo... wish l had done this.

Love and peace to you and your family. So glad all your happy memories of your mom will comfort you, All the best, Linda

Condolences to you and your family. May your mom rest in peace.

So very sorry for your loss of your dear mother. May this time on bring you peace as you remember your mother.

Hugs and prayers,


Este, so very sorry for the loss of your Mother. Your words about having to lose her to refind her really hit home.

Along the way, as a sole caregiver, i too have forgotten the man, husband, dad and friend my husband was for so many years.

Even in your time of sorrow, such beautiful words.God Bless!

So very sorry about your Mom. I hope that all those lovely memories will be a comfort to you. Big hug, Purrlie

Dear Este, yes this is such a wonderful, supportive site. I know I would never have made it without everyone's support. Sending you my deepest condolences. What a wonderful daughter you've been. Strength and courage my dear. Alice

I'm so sorry for the loss of your dear mother. I wish peace and serenity for you, her, and your whole family. Thank you for reminding us to not get so caught up in the daily care of our loved one, that we forget to appreciate what a wonderful human being they are. This disease and the complications it causes is so overwhelming at times, that it is easy to forget that. Be kind to yourself in the next chapter of your life.

❤️ My thoughts and prayers are with you.

So Very sorry for Your Loss.Hugs and Prayers from ar.

Dear Este so sorry for your loss you brought tears to my eyes what a lovely photo thank you hugs to you x

Dear Este, I am crying reading your meaningful and heart felt message. I am so sorry that you have lost your mother. Sending much love in these complex times. Since my mother with PSP died last year, not one day passes by where I don’t call her name. It’s so disorienting being without one’s mother.

Take extra care if you can


Dear Este,

I am very sorry for your loss but your mom is an amazing mother having someone like you who is with her. My heart and all my love is with you.

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