I have followed along on this forum for a couple of years now. You have brought tears to my eyes, a smile on my face and warmth to my heart. I read your posts when Covid kept me from my mom. I learned from you, I struggled with you, and I took notes from you. I found comfort with you.
My mom passed away from PSP on May 6th. Even though we were on this journey for 8+ years, I still wasn't ready to say good bye. My mom never complained about her limitations. She was a warrior. I am thankful that she never had to endure many of the secondary complications of PSP. Progressive as it goes, she just slowly wound down, eating less and less until her departure. Her hospice care was outstanding.
A big thank you to all of you for laying it out there on this forum and letting others know that they are not alone. I took a photo of my mom's hands with mine embraced. I got the idea from someone's post on here who had a plaster cast made of her and her mom's hands. I will always cherish this photo.
Oddly enough, I had to lose my mom to find her again. I was so caught up in over seeing her daily care and somewhat blinded by her limitations that I feel that I forgot the woman, mom, wife and friend that was inside. The clear memories are flooding in now.
Thank you all. You were all my saving grace on this journey.