Graham is at peace

Dear friends, I have not posted since November.

It has been a very  traumatic and emotional time.

Every thing was going well, until December 3  when he fell in the kitchen , at the hospital after exrays  we were told the bad news , he had broken his hip in two places.he was operated the following morning. All went well and he was up and out of bed 3days later.but he wasn't himself he was very vacant, the op had  obviously  taken its toll.

He was in for 7 weeks when he returned home  , but before he could I had to have lots of alterations done to the bungalow, take up carpet because he would be hoisted, have a ramp installed, dining room made into a bedroom, because he was medically fit, we were given a discharge date ,and if this could not be met ,he would be transferred to a care home, over my dead body !!!I told the Doctor, so between Christmas and New Year, our family worked very hard to get everything in order. He came home January 15 We had missed Christmas so we celebrated it  on Sunday January 24.

He never returned to the person he was before, he could not weight bare he never smiled , had to be encouraged to eat and drink , and slept more, we had carers in 4 times a day, he didn't  like that !  I had cared for him 24/7  for 2 years, but we had no choice, because we had been awarded C. H.C on 20th  January /16.

All seamed to be going well, we were getting used to the coming and goings of carers, district nurses, and Doctors. Until !!!!!!! The morning of March 3 rd.

I was woken by the sound of the bed  sides rattling when I rushed into his room he was injectile vomiting, he couldn't get his breath, I panicked, got hold of the sheet and started  cleaning out his mouth, also slapping him on his back, panic over I  dialled  999.

After 7 hours in a side ward, we were told he had  the NORO virus, and he was seriously ill, but he could get through it.So they hooked him up to everything , put a tube down to his stomach  to feed him and gave him oxygen.

Monday 7th Doctors came in full force, said he was doing well, they decided to re do all his tests and if all was well they would see about him goin home at the weekend.But his tests were not good, the ones that should have been up, were down, and visa versa.

Tuesday he slept all day, Wednesday morning I was taken by the Sister to have A WORD with the Consultant, panic set in, I was shaking like a leaf ,he told me he had pneumonia, and did we have a family , if so  inform them, I said two would be visiting in the afternoon, he asked if we had a care plan, and could  I bring it into the Hospital the following day. Because he said that I calmed down

All three of our children plus our  Grandaughter visited that day, G was awake off and on and seamed to be enjoying the chatter.

Evening  they all returned each one was worried, I asked the nurse if all was well, she said, we will know better in the morning. G was sleeping peacefully I was holding his hand, he opened his eyes and sqeezed my hand, our eldest said he has gone back to sleep listen he is snoring I realised , and ran for the nurse, all hell let loose Doctors nurses appeared , we were ushered out of the room, we knew, they did C.P. R but he had passed. We were all there we held his hands and told him we loved him it was 9.15.

I am writing this for mum, she wanted  you all to know, she sends all good wishes to you all and sends thanks to Yvonne for her help with the C.H.C form. She will be in touch .xx,

21 Replies

  • ELLIE7676, So sorry to hear the news about Graham. You have been through such a stressful four months. I am so glad to hear that all of you were with him an that it seemed peaceful. May he rest in peace and may peace be with all of you. Hang in there and we are all thinking and praying for you.


  • Sorry for your loss x

  • I'm so sorry your dad has left you all and it's sad it had to be in such a traumatic way.  He is at peace now and PSP free.  I pray you, your mum and the rest of your family will find comfort in knowing you did all you could for him and he knew you all loved him.


  • thanks 4 that  nanna b

    and condolences to ellie and u r family 4 yr dad's passing]




  • Oh Ellie so sorry for your loss, sitting here tear running down my face, always remember the good time, this horrible illness takes away so much, but it can't take away the good time.  Ellie take your time to heal, one day at a time, thinking of you.  Rest in peace Graham, you are at peace now, this horrible illness can not hurt you no more.  Sending you a massive hug Ellie.   Yvonne xxxxxx

  • I am so sorry to hear about this - my dad had some tough times the last 4-5 weeks as well - best wishes for you and the family

  • Sorry to hear about your sad loss;may your dear Dad rest in peace,free from this awful illness x

  • My heart goes out to you and your family, even when you think that the end is approaching it is still such a shock and so sad. Graham is free from this awful disease but it is the ones left that continue to suffer. Take time to heal and reflect. Sending my love. Kate xxx

  • I feel really sad about this poor man and poor family. At least you tried your best more than 100% sending love xx

  • Sending big hug and much love. May your Dad rest in peace, away from this evil disease. There is only one way to grieve and that's YOUR way!

    Lots of love


  • So very sorry to hear the sad news. Your  Dad is at peace now. I hope that your Mum  and you and your family find peace in the fact that you did all you could for him and he knew he was well loved. X

  • Peace be with you all, along with wonderful memories of the good times. 


  • Sending a huge hug to you all and thinking of you all xx

  • Sorry for your loss. I hope you will all be able to comfort each other at this sad time. It has been so traumatic you will need time. My thoughts are with you,

    Love Jean x

  • Sendings hugs to you all at this difficult time xx

  • Ellie and Family

    I read and responded to this post when it was 25 minutes old. And promptly lost my reply.  Forgive me.  When a PSP patient gets sick or has a surgery....their fragile systems get further worn. They cannot bounce back as well as those without the disorder....I is a scary truth....But a comforting truth is that you took good care of your daddy.  You made sure that he was comfortable and safe.  This is all we can do....You have taken care of your mum and no doubt you have helped others if for no other thing that to witness your stalwartness in all of your daddys trials and tribulations.

    Now comes the  taking care of you.  Give yourself a hug,know you did all that you could ; your mum did all that she could.  I wish both of you peace and a joyful future.

    I leave you with these words:


    Fear not; for I am with you: be not dismayed; for I am thy God: I will strengthen  you; I will help you; I will uphold you with the  right hand of my righteousness.

                                                                          Isaiah 41:10

    Blessed be God,....Who comforts us in all our  tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we ourselves are comforted of God.

                                                                         II Corinthians 1:3,4

  • Dear Ellie7676

    I am so sorry to hear that your dear Graham has passed away.

    I hope you will find peace in knowing that he is now free of CBD and that so many here are thinking of you and sending you and your family much love xx

  • I am so sorry, please know my thoughts are with you and your family xxx

  • Dear Ellie7 676

    Have just seen your post and send  sincere condolences for the loss of Graham - a sad time for your and your family but  blessed relief for him from this devastating condition. My thoughts are with you xxx

  • I am so sorry for the loss of your dear Dad, please try to take comfort in the fact that you did everything possible to help him through this awful disease, I am thinking of you and all your family and send you all my love.....

    Love Pat xx

  • I'm so sorry xx

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