Has anyone’s loved ones experienced Full Body Tremors & Excessive sweating with PSP. ?
My husband has these on a fairly regular basis now. Lasting 2-6 days. Was wondering if there is any treatment available for it. I have to constantly change him when this happens, as he is drenched. 😟 Also exhausted from all the shaking .
He has recently been in hospital with a chest infection. And last month with pneumonia. But from a water infection. It surely is taking its toll on him.
There was a post 6 months ago with lots of replies, hopefully something helpful. healthunlocked.com/psp/post...
Thank you for your reply. I will take a look.
Hi Pinkcamelia!
These are our experiences and informations about "tremors":
A low level of calcium or the incorrect level of electrolytes in the blood can cause tremors. In our case, to avoid these kind of problems, we take three additional measures in the diet:
1) In the daily diet we include in the breakfast a quantity of fresh cheese combining with a small quantity of citrus fruits (orange, lemon, strawberries, etc.) and in the meals some egg yolk or fatty fish. And just as important as the incorporation of these kind of foods, whenever the circumstances arise, we expose the patient to the sun discovering legs and arms. The idea is to favor the presence of Calcium in the diet as well as favor the generation of vitamin D.
2) Isotonic drinks are interesting to help maintain blood electrolytes at the correct level.
3) We base the meal programming on the Mediterranean diet, favoring the presence of fruit, vegetables and legumes without forgetting the presence of meat as a source of vitamin B12.
And about "sweating"this information may be related:
Flushing of face, neck, and upper arms. Patient can burn-up in a room over 18 degrees. The condition is probably HYPOGLYCEMIA which can occur to people suffering a rare condition as PSP. The patient need a sugary snack of something like biscuits mashed up with tea and or cup of tea with a little sugar to bring the blood sugars back to normal.
Temperature (fever) often sky high and then back to normal. Sweating quite a bit and can wake up in the morning with pyjamas wet. Never sick even when temp was over 100*F (38*C). Keep hydrated. For caution, ask the doctor to visit.
We have observed that she feels warm, even with noticeable sweating but at the same time with quite cool feet or hands.
In this situation, she tends to remove blankets, sheets, diapers and clothes.
Especially after taking food and going to bed for a nap or night rest, she complains systematically and persistently until we free her feet from any coat and cover her body with just a sheet. This is how she falls asleep (after taking a Lorazepan pill at dinner). We always keep a dim light in the room and the sound of a low volumen radio with music.
Once she fall asleep we cover her body (except feet) with an additional light quilt or a thin blanket, leaving free space around the neck and head. We turn off the radio and make two night visits to correct situation if necessary.
This is how we achieved quite nights so far.
Hug and luck.
Luis
Thank you for your reply. I will try some of these. At the moment he can’t go in the sun due to being on doxycycline. Sadly he doesn’t eat vegetables. But will eat most fruits. Also likes cheese. Already takes Vitamin D supplements as requested by Gp. Once again thank you for information.
My late husband had these symptoms and sadly it's part of this awful disease, my husband had to lay in the hospital bed at home with no clothes on, just an incontinence nappy and a fan on him continuosly, his tremors got worse because the muscles go into spasms and basically locked his limbs so he couldn't move them. It is a very distressing and unknown illness and I send lots of love to you both xxx
Thank you x
Hi! I'm sorry your loved one is going through this. My father experienced those body tremors during his last few weeks of his life. After the last big body tremor, he only lasted about 2 weeks. He developed pneumonia, fevers, sweating profusely and the medicine wasn't helping him at all. He ended up developing sepsis and passed away almost a month ago. Stay strong!
Sweating
Full on, crazy week!
tremors shaking jerking 
Excessive saluvation
Sweating/Clammy
