So much sadness in his eyes.............. - PSP Association

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So much sadness in his eyes..............

Bargiepat profile image
15 Replies

I have just watched this disturbing video...............

I can so relate to how he feels but try so hard to not show it. Music was the thing that he loved and photography is my love.

XXX Patrick

youtu.be/VVWGutY0xbw

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Bargiepat profile image
Bargiepat
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15 Replies
enjoysalud profile image
enjoysalud

I appreciate that you have shared your sorrow with us. I am so sorry.

My son was a professional freelance bass player, and he played with many well known groups. Nearing his death, I asked him what he missed the most...."MY MUSIC".

Blessings, Margarita, Los Angeles, CA, USA

Ratcliffe profile image
Ratcliffe

That is a very interesting piece. I’ve often wondered how Dudley Moore progressed with the illness, and I have never seen footage before.

What is very interesting is that it proves how individual the disease is. My David never had the slurring of speech and slowness of thought. He did have the staggering backwards falls etc, but his speech just faded away into a breathy whisper, it never had the slurring.

Also, David’s mind I am sure was 90-95 percent up to speed right up until the end, it was just that he couldn’t portray it with words, but with the right stimulation, I was able to get instant responses.... as he couldn’t laugh you would see his shoulders go in a sort of silent laugh.

The mind was there but the control was the lacking part.

With Dudley, you can see the thought process, and this was classed as early stages David only slowed down like this in the final months.

It’s such an unusual illness...

enjoysalud profile image
enjoysalud

You are very sweet....thank you. I loved that you shared about your mom's FABULOUS doughnuts. What a wonderful tasty memory.

Blessings.................

enjoysalud profile image
enjoysalud

Thank you!

Nanny857 profile image
Nanny857

Thanks Patrick for sharing this, I found it very moving and helpful. Love, Nanny857 x

raincitygirl profile image
raincitygirl

That's a heartbreaking one, Patrick. I can see my own husband reflected in his response to the question from Barbara "Are you bitter?"..and really he's more deeply disappointed, and grieved, than bitter.

So hard for him to lose music and you to lose photography...or anticipate losing it, as you can still do it - although with a simpler camera? Less equipment? How do we handle loss and still be "full people" and find life worth living? So much that was taken for granted before is now raw and questionable for me, since Garth passed.....

XXX Thinking of you tonight and sending you Hugs :-)

Anne G.

Satt2015 profile image
Satt2015

I watched this many times before Pat, so incredibly sad and absolutely heartbreaking x

Mamapiggle profile image
Mamapiggle

I know what you mean Patrick it is so sad I tried to be strong every day but what I miss most of Is me how are used to be sending you a big hug.

Jeanette x xx

lindaD_ profile image
lindaD_

Have watched this a few years ago , did help understand , will watch again when I’m not so fragile

Brenive profile image
Brenive

Thank you for posting this Patrick. Its the first time I've seen it, Ivor finds it hard comeing to terms ,with so many things he's always done each day, for me and his self. ..feels like the bus didn't stop and pick us up...Brenda xxx

raincitygirl profile image
raincitygirl in reply to Brenive

what an interesting analogy, Brenda..... XXX

Anne G.

dollydott profile image
dollydott

I have seen this before but I watched it again and yes it's so sad .

It must be so hard for you to watch Patrick.

Sending love and hugs your way

Lynda x

AJK2001 profile image
AJK2001

I watched this for the first time a few days ago and thought how brave of him to do such a film. It seems PSP effects a lot of creative people, look at the people on this forum like yourself who paint, write, and then look at famous people and you have Peter Sarsedt, Bob Hoskins, Nigel Dempster (there is a PSP video on youtube with him, that I'm afraid is also a tearjerker, what got me is him saying "he misses being able to laugh". I hope you can still laugh Patrick.

Big hugs

A

Katiebow profile image
Katiebow

I watched this video and many more, especially at the beginning when I was trying to understand this disease. Ben never wanted to watch them, I think he was afraid to know the reality so I never pressed him to do that. You are a brave man Patrick, facing challenges head on and continuing to keep on making the best of your life and the things you enjoy. I take my hat off to you.

Love Kate xxx

SewBears profile image
SewBears

This is the first time that I’ve seen the video. Thank you for sharing! It’s so strange to see symptoms of PSP. If I didn’t know better I would have diagnosed my hubby with PSP instead of CBD. I guess I still don’t understand the difference between the two. They are both so similar. At this point though, like others have previously said, the point is moot when you’re this far along. So sad.

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