Hi All
Over the past 2 years my father has been struggling with this horrible condition. Recently I have been hearing a lot about CBD oils and was wondering if anyone has any advice or experience in using them?
All help and advice will be appreciated.
Thank you
Hi, not sure about CBD oils, my hubbys family encouraged him to take coconut oil daily when he was diagnosed. No proper scientific research I can find so have always been cynical!! But 4 years on his Neurologist always tells him he has a slow progression so hubby keeps taking it and puts the slow progression down to the coconut oil! Would not want to give any false hope but I think we all will try anything rather than doing nothing. Would just like to see some scientific evidence!!!
Xx
My J's neurologist brought a half jar to try within 24hrs of diagnosing CBD/Frontal Temporal lobe dementia. Said he himself took it daily and believed it was beneficial. Be careful of dose though as it puts bowels in overdrive! Sadly was too late to have any effect on my love.
Hugs
Jen xxx
Hi, I can't offer any real advice, but I am also just looking into purchasing CBD. My mum suffers from CBD rather than PSP, and sleeps terribly at night. I was looking to get gel tabs rather than the oil (more for ease). Any help with how much is given (I've seen 3 x 25mg a day as suggestion) - and I suppose it is different for every person. Any advice or shared experiences would be amazing x
My husband takes CBD oil (medical marijuana) as a sublingual tincture for pain. I don't think it has any impact on PSP per se. To help him sleep he takes the version that contains TCH ( the part that gives the 'high'). He doesn't use that during the day as it will make him even more likely to fall. He also takes a small dose of Valium to help with sleep and prevent night cramps.
Hi, we are at our last effort to use a doctor prescribed medication for her tremors and dizziness and my mom has asked me to give her CBD and/or medical marijuana. It was helpful to her in the past, but I wasn't comfortable administering it to her because I don't know much about it myself. She recently obtained her medical marijuana card and has been taking edibles. CBD oil seems to have a lesser effect. She appears to show some clarity in her communication. Her tremors slow down and sometimes disappear and she seems more calm and relaxed. We are going to be slowing getting her off her prescription medication and will be going strictly to medical marijuana or some form of it. The only downside I see in this is that the government doesn't recognize this as a prescription drug and therefore it is all paid out of pocket and can become a big monthly expense. On the other end, it is tough to see her suffer and we want her to be as comfortable as she can with this ugly disease that is PSP.
A year on since I wrote this post, things have become more difficult for my father. CBD oil didn't have any positive impact for him unfortunately. I wish I could do more for him.
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