PSP-CBD Awareness

[daddyt]

Sadly, we lost another member of our extended PSP-CBD family this morning. I know for me, and for many others, each loss is a stark reminder about the endgame of these two insidious diseases. And while the PSP-CBD Ice Cream Challenge was fun and has seen more participation than in previous years, we (patients, caregivers and loved ones) cannot forget the purpose behind it all. PSP-CBD Awareness. Awareness creates understanding. Understanding creates compassion and much needed support that drives research towards treatment and ultimately a cure. I would much rather prefer to ring 'the bell for a cure' than to send hugs, prayers and messages of condolences. We cannot rely on others for the heavy lifting. We, the stakeholders, must be the ones to advocate for ourselves, or on behalf of your loved ones. One more death is one too many.

Tim

[LuisRodicioRodicio]

Very lucid!Hug and luck!

Luis

[Motts]

Sending gentle hugs to everyone in this maze of PSP... Granni B

[Richard33]

Amen to that I fear 😞

[Richard33 in reply to Richard33]

...............But if that amount of ice cream isn't going to finish you off, I suspect PSP is going to have met its match 👍😂

[daddyt in reply to Richard33]

Death by ice cream... I like it.

[Richard33 in reply to daddyt]

You are certainly pushing the boundaries of what man can survive! 😅

[Plantnut]

Thank-you daddyt for your clear sighted perspective which I wholeheartedly endorse& support.

This site really is a lifeline for me

Best wishes & look after you - Jan