Marcink

[Marcink]

I'm new and I don't have much to write. I take no medicine and was just discovered I have with PSP? Since I am so New i don't take anything for it , but I have a leg that hurts me a lot so I go to bed really early.

[enjoysalud]

Welcome!

What city and country do you live? I live in Los Angeles, CA, USA.

How old are you?

[Yvonneandgeorge in reply to enjoysalud]

Welcome to our family, we are in the uk. Yvonne xxxxx

[Marcink in reply to Yvonneandgeorge]

Thanks. I will try to be a good neighbor.

[Marcink in reply to enjoysalud]

Marcink

I live in Houston, Texas. I am 78 years Old

[easterncedar]

Pain is so exhausting. I'm sorry you have that to deal with. Have you had any help with managing it? When I had trouble with pinched nerves in the lower back or spine causing pain in my leg, I found ice packs on the spine helped a lot. My guy preferred a hot pad for his.

I'm glad you found us. There are friends here who will understand and will always try to help.

Peace, Ec

[Marcink]

I too had an operation on my back. It was L4 and L5 were pressing on my nerve and I had it shaved, I think. I will try the ice packs or hot pads.

[raincitygirl]

Hello Marcink and Welcome!

How long have you had symptoms for what has now been diagnosed as PSP? Are you managing ok and do you have some good family or friend support? We are a far-flung group: from the UK to US to India, Australia, Northern Europe and South America! Everyone is very supportive.

Anne G. (wife/carer of 78-yrs old husband with CBD)

[Marcink in reply to raincitygirl]

I have had the symptoms for about a year. I am OK. I have a husband who treats me like a queen.

[Hidden]

Welcome Marcink.

These are things that may help you if have not already done so.

Please get your health directive in order,DNR ( yes or no) peg feeding ( yes or no) any and all financial matters dealt with.

Do your research,do ask here,so many knowledge people here with first hand experience.

Try to stay ahead of this disease, meaning that if your low income look for resources that may help with,shower chairs, wheelchair, hospital bed and even a shower and or location of sleeping area if you are in a two level home.

Wealth of information and first hand knowledge here,

Dee in BC

[Marcink in reply to Hidden]

I'm afraid I don't know what DNR, peg feeding means. I have all financial matters in order. I am not low income. Where is there a wealth of information?

[Hidden in reply to Marcink]

Hi again.

Peg ,Medical Definition of PEG. PEG: Stands for percutaneous endoscopic gastrostomy, a surgical procedure for placing a feeding tube without having to perform an open laparotomy (operation on the abdomen). The aim of PEG is to feed those who cannot swallow.

DNR, Do not resuscitate (DNR), also known as no code or allow natural death, is a legal order written either in the hospital or on a legal form to withhold cardiopulmonary resuscitation (CPR) or advanced cardiac life support (ACLS), in respect of the wishes of a patient in case their heart were to stop or they were to stop ...

You also can do a search of pretty much anything health wise for PSP,the search on my tablet is upper right hand ,just hit the more tab and it's a large search bar at top right side of the home page on my laptop

Please feel free to ask these good people on this site any questions regarding your health.

Dee

[Marcink in reply to Hidden]

I have a DNR notice. I don't have a PEG notice because I haven't needed one yet.

Laura

[smallshaw]

Hello Marcink

Sorry to have to welcome you to this site although you are very welcome. I am also in the U.K. just outside Manchester.

[Marcink]

So you're in the UK are you and I am in the US. Don't worry about this site as I have met many wonderful people.

[daffodil48]

I am in the US in Ohio. My husband is in his 4th year does not take medications. First diagnosed with Parkinsons, Parkinsons meds tried for more than a year with changes to dosages with no positive changes. Discontinued as he didn't like the side effects. Already dizzy and dizziness worsened. Had MRI and other tests for the dizziness last year when he was diagnosed with PSP (neurologist saw the Hummingbird sign). He is still walking around although slowly and carefully, takes care of his needs, (slowly) showering, dressing etc., has only had a couple of falls. Worst problem for him is the dizziness, coughing and coughs up phlegm most of the time. Drooling, speech is very slurred, and has started not replying to me most of the time just doing the thumbs up or down, that is if I am looking at him. Sometimes stares. This is a great site with great people who are here for you. I have been reading through posts from years ago and have learnt a lot. If you have questions, support, you are in the right place.