First sign of confusion?

[crab2093]

We have moved into a smaller house and there are some leaky taps which we have to fix. Ch woke up in the night and said "Why don't we just go to the agent?" "Why don't we get them to fix the leaks? After all we pay them" I said " This is our house. We have to fix the problem ourselves." he said "Oh, is it? Oh well of course." ... Is this a one off? Or the beginning of PSP confusion?

[Kevin_1]

Hi Val

My experience of Liz was that in the night and first thing in the morning she was liable to be more confused. In the mornings sometimes she would come up with quite odd ideas which I needed to explain away. My mother who had mild dementia would do this too. I sometimes thought that she would drift in and out of dreams and wakefulness confuse to the two until she was properly awake and the matter discussed.

I might be wrong, but my understanding is that PSP does not involve too much confusion, more a deterioration in the ability to process information.

Hopefully others here will come back to you and you might build a fuller picture.

So sorry you are having to deal with this.

Best

Kevin

[Hidden in reply to Kevin_1]

Yes, we didn't see much dementia, but confusion was very noticeable.

He couldn't read anymore or spell or make sense of some things, but he knew how to direct me in the car if I didn't know where I was going.

[Kevin_1 in reply to Hidden]

Yes, its a little odd. Liz is a long way down the line now, but she still corrects me on dates and things.

[Kevin_1]

Sorry to come back a second time.

This is a good read - I don't see confusion there.

psp.org/wp-content/uploads/...

Best

Kevin

[crab2093 in reply to Kevin_1]

There is no other confusion. In fact his brain is very good and provides strategies to solve most of our problems (such as where to put the next lot of rails, how the new vege plants should be planted and steps to changing the leaky washer etc). Plenty of falling though, wobbly legs and laughing.

[Kevin_1 in reply to crab2093]

That's good on the confusion - Liz's was limited and never developed.

I guess you mean inappropriate laughing - I go a lot of that.

I wish you a long time with good things too.

[Hidden]

Larry will come out with some strange statements occasionally. Usually when he is tired. Most of the time if I tell him he is wrong he is OK with it. If he’s adamant I go along with it. It’s pointless to argue with him.

[doglington]

Chris would often say similar things when he just woke up. He wasn't confused in general but would sometimes wake with a fixed idea. I agree with Jeff that if he resisted reality I'd let it go.

Its PSP

[crab2093 in reply to doglington]

Thanks to all. I wasn't worried, just interested. What will be will be. We're still in early days. I agree that patience is the answer where possible, letting things go, enjoying the good times and riding the bumps. Good to hear from others though. cheers. ... val

[doglington in reply to crab2093]

Thats right. Make the most of " now ". You can't control the future but you can enjoy the present.

love, Jean

[Kevin_1]

Great.

I always found it helpful to know all about the possible symptoms and of course everyone is different and Liz didn't have them all.

It just gave me orientation to make sense of things as they developed.

Though a long way down the road now Liz is still compos mentis and we have good times together still.

I wish you both the best of this journey and so agree with Jean above.

Warmly

Kevin

[crab2093 in reply to Kevin_1]

Thanks to you too Kevin. Hope your journey as smooth as possible. ...v

[Hidden]

Hard to say at this point, my husband was still pretty alert most of the time,

But he panicked if I wasn't in the house or where he could see me