I am not coping so well at the minute. Its the behaviour stuff that wears me down.
Today I decided to start hitting the big red buttons!
And, we had a big success.
Unbelievably they are putting us through another DST assessment and calling it a review prior to full CHC. And, yes we have already been through all of that and been told that we were to get a Personal Budget back in November.
They keep walking us around the block!
The local Hospice social worker has been trying to advocate for us and she has come back saying that their notes are incomplete, they don't know what is happening and that she is making little headway.
So today I telephoned the CCG and told them they had twenty-four hours otherwise I would call the Police and when they arrived I would hand them the house keys and leave the County and CCG could pick up the pieces.
Well that worked we are being fast tracked onto all of the care we want... Yes, still stuck on fast track!
So I have called Beacon, the NHS arms length CHC advocacy service and they are going to take up our case from a legal perspective.
At least we have full on care about to come in (ever the optimist) and they have given me a telephone number to get respite care 'on demand' whenever we need it. That of course will be subject to there being vacancies.
Oh, well what on earth would I want to do if I had a life.