4 weeks since I wrote.

[Althea-c]

Barry is the same as he was 4 weeks ago.

I am absolutely heartbroken.

Althea

[honjen43]

Have just reread your previous post. Your are both in that really tough spot where it is unbearable whatever you think!

I hope for both your sakes it does not have to continue too much longer. It is certainly not a life!

Take care of yourself! Sit by his side and, if you can, talk about the good times you have had and what you have both achieved together. Tell him if you can that it is OK for him to go, that you will be OK by yourself. It may be the reassurance he is waiting for. Get someone to help you with his care so that you can leave to get some rest.

I spent time (a mere 3 days) with my husband while he made up his mind, and he left while I was away, their way of making things easier.

It is never easy! But nor is watching him like this!

Take a deep breath as it sounds like the time has come to let him go.

My thoughts and prayers are with you both.

Big big hug!

Jen xxx

[Althea-c in reply to honjen43]

Thank you Jen, it's soooo hard to let go,but I know I must..... maybe tomorrow I will.

Much love

Althea

[honjen43 in reply to Althea-c]

Horrid spot to be but glad you know where things are!

Big hugs

Jen xxx

[Althea-c in reply to honjen43]

Thank you 💛

[doglington]

Big hug, Althea. Its a dreadful time. I felt I was in a nightmare.

Chris also went peacefully when he was alone.

Lots of love from Jean xxx

[Ratcliffe in reply to doglington]

Try to keep your head up Althea, and do your best to enjoy what might be your last times together. Make sure you tell him that you love him.

Like Jean, my David chose his time to go whilst I was away, only problem was that I didn't know he was that close, so I didn't get to make the time to spend with him, I just carried on the daily routine. So please make sure you spend time together.

Hugs

Derek

[Althea-c in reply to Ratcliffe]

Thank you Derek, I will.

I have loaded all Barry's favorite music to listen to. From Gilbert and Sullivan to Ray Charles.

Trust you are you coping without your David.

Rest well and mourn deeply.

Much love

Althea

[Ratcliffe in reply to Althea-c]

Yes, I a,m learning to cope, slowly. There are good days and bad days as you would expect. But I am slowly starting to do things again, rather than just moping about the house...

[Althea-c in reply to Ratcliffe]

💛💫

[JantheNana in reply to Ratcliffe]

Same here with me.I had no idea he was so close.He and I both thought he would get to come home from the rehab and would have more time together.So it was a shock when they called me in the middle of the night 4 months ago to tell me he had passed away.Although I thought I was prepared,I wasn’ t ready yet for that.

[Althea-c in reply to doglington]

Thank you Jean,

Much love to you 💛

[Cuttercat in reply to doglington]

I feel like I'm in a nightmare as well but the nightmare will only begin when Charles leaves me

CC

[Althea-c in reply to doglington]

Thank you Jean

Much love 💛

[Zeberdee]

As you say its heartbreaking for you and I feel your sadness. Stay strong for your loved one and give, as I am sure you do, those important kisses and cuddles. Love Jxx

[Althea-c in reply to Zeberdee]

Thank you for wishing me strength.

I am almost depleted.

Much love

Althea

[enjoysalud]

Gosh, Althea-c, difficult. My prayers are with you.

My son died the evening (May 4, 2017 at 8pm) after the hospice Chaplin about 3pm prayed with him and me in the afternoon. Jeff had expressed with hand gestures that he wanted God to take him. The Chaplin prayed out-loud that Jeff had been true and loyal and was asking to be brought home. I went home about 6pm. I thought it would take at least 10 days...his vital signs indicated that....I went home with peace in my heart thinking that I would see him the next morning. I told my son that he had been the best of son's that I would miss him terribly but I would be more at peace if he was no longer suffering.

My son was NOT given morphine or ativan, no meds, and the last two days and evening were peaceful.

That night at a few minutes past 8pm I got a call from his paid caretaker. He had died. For the longest time I felt bad that I had not been present, but when I read that others have not been present, and that my son "let go" when HE was ready, I am now at peace.

Blessings............

[Yvonneandgeorge]

Thinking of you, you must be exhausted, he doesn't want to leave you yet, stay strong, he must love you so much. Yvonne xxxx

[Katiebow]

Stay strong Althea and as others have said let him know that it's OK to let go. I know that giving that permission helps, it happened with my dear mum when she was at the end of her life. The hospice nurses encouraged us three girls to give our mum that permission and it seemed to help her. My thoughts are with you and hope that Barry will soon be free from the shackles of PSP and gets to find peace at last. I know it's hard to seem to be giving up on the one you love so much but we all have to go at some point and maybe this is the time for Barry.

Love and hugs

Kate. Xxxx

[Tippyleaf]

So sorry that this PSP battle still wages so cruel on both of you.

Hope you can find one or two moments of peace during the day to recharge those batteries, Sending love and hugs

Tippy