Wise words...just seen this post on Facebo... - PSP Association

PSP Association

9,255 members11,351 posts

Wise words...just seen this post on Facebook. Thank you to everyone supporting each other in our hardest & traumatic moments x

Spiralsparkle profile image
13 Replies

When we experience something that causes us to feel shock and sadness, we may feel the urge to withdraw from life. It may seem like remaining withdrawn will keep us protected from the world, but during these times it is important to reach out to those trusted and precious people who care about us the most. Even with our best information and reasoning, we never know when someone else's experience or perspective can give us additional information that we need. The universe speaks to us through many channels, and when we open ourselves up to receive its messages, we also receive nurturing care from a loving partner in life's journey. bit.ly/2fpKDPB #DailyOM #quotes #grief

Written by
Spiralsparkle profile image
Spiralsparkle
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Marie_14 profile image
Marie_14

Spiral you are so right. Thank you so much for sending that nice post.

Lots of love to you.

Marie x

Katiebow profile image
Katiebow

Spot on Spiral, wise words. xxx

Pentland profile image
Pentland

Just read 5he.full article and it is so true to say that help can come from.the most unexpected people. I have always felt guilty about burdening others with my fears but wouldn't life be great if we were all there for one another? This is what the folks on this forum do best - always there with a shoulder to cry on, a word of advice or a happy thought. Thank you my friends.

Margaret

Spiralsparkle profile image
Spiralsparkle in reply to Pentland

Definitely the support on here is so precious and heart felt x

Jafarrar profile image
Jafarrar in reply to Pentland

Well said im so thankful for all of you just being you and being human. I hate myself when i get impatient with Chip he gets fixed on one thing and it can take all afternoon going over it. He cant help it.

Spiralsparkle profile image
Spiralsparkle in reply to Jafarrar

It is hard when become fixated on one thing and when you are exhausted patience is definitely not in high reserves.

Jafarrar profile image
Jafarrar

So good

Jafarrar profile image
Jafarrar

What a good word for me today. I am withdrawing from life, it’s so hard for me to say I need help not just because I take care of Chip but because I can’t seem to reach out I’m stuck. Thank goodness for this site I feel like I can talk with you all. My heart goes out to all of you wish we were close in distance to help each other on those tough days when energy is low. Thanks for listening love you all.❤️💕🌹💐🥀

Heady profile image
Heady in reply to Jafarrar

Hi Jafarrar, that's so sad, that you feel you are withdrawing from life and that you can't admit you need help. Well, guess what??? You just have!!! OK, it's only to us, who wouldn't believe you, if you said you didn't need any help. I don't know where you live, so can't advise on the services that may be able to you. Please tell us, so the appropriate people can step in. Nobody can care for someone full time, on their own, for a loved one who has PSP. it just can't be done. Sooner or later, circumstances will take over and you WILL crash. I promise you, it's not a place I would recommend. I tried it, I still have the scars and so did Steve. You are not failing your loved one, in fact the complete opposite. If you want to carry on looking after Chip, then scream HELP, from the highest mountain you can find. It's in his best interest that you do this NOW.

Sending big hug and much love

Lots of love

Anne

Jafarrar profile image
Jafarrar

Anne, thanks for the help. I live in Ft. Worth Texas. Chip has CBD, It doesn't sound like it is as bad as PSP, Chip doesnt have the choking like PSP deals with, he coughs some what some swallow problems but not bad. God Bless

honjen43 profile image
honjen43

Thanks for this post, SpiralS! Seem to be stuck in a rut myself atm, and not too interested in getting out and about. I can relate better to people on this site than 'out there', and still feel I am able to contribute here better than going to work with Meals on Wheels or Hospice!

Hugs

Jen xxx

Spiralsparkle profile image
Spiralsparkle in reply to honjen43

Big hugs back...thank goodness for this site for us all to be able to feel safe to off load xxx

Jafarrar profile image
Jafarrar in reply to honjen43

Yes i feel the same.

You may also like...

This journey is a terrible one

nursing home when we could no longer care for her. It has been our first experience with a care...

No letter of condolence from neurologist.

Has anyone received a letter or phone call from the movement disorder specialist after losing your...

Please Help - Home care on NHS

level of care she will need. Has anyone got any experience of keeping a loved one at home with...

Has anyone dealt with aggression, hallucinations with CBD?

so. We, too, had many plans to enjoy life. I get very sad when I see much older couples being...

Question about urination

to see the amount of support the British receive when caring for their loved ones at home. Here in...