My husband died last week after a 10 year battle with PSP. It is bittersweet to say good bye to a handsome gentle kind man , my mate of 46 years. He is in Heaven no longer suffering, no doubt sitting at the feet of Jesus. I have found this site to be very informative in helping us walk this long journey with this horrible disease managing medications and different symptoms. Thank you all for your stories --a wealth of information and made us feel we weren't alone in our suffering. His funeral was a celebration of his life and I found that so comforting to remember him as he was before the disease. You tend to forget that when you are in the midst of care giving the illness. We must never give up hope for a cause and cure. I'm hoping Canada can be a little more active in this area. I will continue to follow you all on this site. It's hard to understand why different ones suffer but I do know God will walk every step with us and never leaves us alone.
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