I know how difficult it can be in accessing services etc but I just wanted to highlight that there IS good practice "out there" as it seems that it seldom gets mentioned or recognised.
Mum's GP has been absolutely brilliant!! We never have a problem getting hold of them and when I ring the surgery and ask the receptionist to pass a message on, the GP always gets back to me the same day. We never have to battle or plead for a home visit and we are never made to feel like a "nuisance".
Just recently I provided them with the information about the PSP study day for professionals to introduce the new Care Pathway and the GP thanked me and said they would try to make sure that someone from the practice is able to attend.
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Kathy
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Hi Kathy....like you I have only praise for all the Health care professionals involved in my late husband's care. We had a local Sprint team ( now renamed The Community Neuro team I think ) who were absolutely brilliant. Nothing was too much trouble for them. If I rang them things happened immediately. It really does depend where you live.
I am sad to say,I have had a really different experience.The medical proffession just left us to get on with it,there were lovely people in the care but the overal care or lack of it,was very poor indeed.The Neurology n particular were useless. I feel we were left to get on with things and had to fight every step of the way. I would also like to say,that since my husbands death,not one of the people involved in his care, contacted us,it has now been a month.I am glad you have had sunch a different experience.
im so sorry pinda that you had this experience with medical profession, I am a carer from a care agency who goes into a ladies home to provide the best care i can for a family thats going through so difficult time.. how would you guys advise me to give the best possible care that i can.
Like you we have had very good care since my husband was diagnosed with psp. The GP has been brilliant and referred my husband very quickly for physiotherapy, speech and language therapy and occupational therapy. All of the people we have come into contact with have been helpful. They have all made us feel that there is a partnership relationship in my husband's care.
We probably don't praise the NHS often enough when it gets it right.
Sorry to hear you have not had the service you need or deserve
Although Mum's GP has been brilliant the District Nurses are a whole different ball game!!! We are in the process of submitting a huge complaint about them via the PALS system,
I know it's a bit of a pain but I suggest you see if you can get someone to help you make an official complaint - unless people keep shouting nothing will change
I'm glad your are "still here and still smiling"!!
I read your blogs regularly and if there is anyone who should receive referrals and support it is you. It's always sad when the level of care is so patchy, but I have to say my husband to date has received very good care.
However, it's not all plain sailing, as his sole carer I have asked for a careres assessment. The initial response to my enquiry was quick, but I think this is the easy part taking down details. That all happened with in two days of my initial phone call. Since then nothing has happened. I know I will have to follow this up.
The NHS has been good, the same cannot be said about social services.
my husband died on 22nd of June after suffering with CBD for over three years the professional help we received in that time was second to none so we must have a good team in the northeast of England
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CBD decline
I'm new here. Where do I start...? Help! 
Father recently diagnosed, where do I Start in helping him to get the best care?
He is gone
