PSP Association

Out of character

I haven't posted for a while. My Dad has been in hospital with aspiration pneumonia for nearly 3wks, with a two day interval, coming home but then back in.

He's medically (of sorts) fine so he is due home Wednesday. Last night I had a call from a nurse saying could I calm my dad down as he's was very agitated & aggressive. Trying to hit nurses and wouldn't go to bed. I could hear him and when I spoke to him he was ranting. This has never happened before! They got him into bed at last but I'm very concerned. When I saw his earlier in the day he had a wild look about him and did seem a bit annoyed but I'm truly shocked. Any experience of this out of the blue?

Thanks for reading xx

Update:

Dad has yet another chest infection so back on iv antibiotics. This is his eighth since December. He has always refused the PEG since the start, so now we (he) have to decide when, if or whether to carry on treatment next time he has one. I've looked after my dad for a couple of years now and this is so hard to deal with. So sad right now 😐

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My mum didnt have psp, when she got agitated and aggressive it usually ment she had a urine infection.once treated she calmed down....Brenda. .

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I've just been in to see him and he has yet another chest infection, didn't even get chance to go home this time x

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Takes time sometimes hope he'll soon be well....Brenda. .

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I am so sorry that you are going through this. I am in a very similar situation. Be as strong as you can and feel blessed for the memories and time you you have had together.

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Thankyou.

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Thinking of you. Its so distressing and one feels so helpless.

Big hug from Jean x

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Thanks Jean x

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Sending massive hugs to you.

I was going to say rule out an infection for agitation but you now know he is poorly again with chest. All you can do is make the decision on your best knowledge of his wishes about future treatment.

Xxx

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I wish these posts had "hugs" button, not a ""thumbs up". So, my "like" is meant as a show of support to you (not a like for the situation).

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Of course, I know that & thankyou. My dad is improving as he usually does so then it's so hard to have the 'carry on or die' discussion, ready for next time he has an infection which he will, his swallow is very poor now. I know from reading on here that the future with PSP isn't good but it's all so hard.x

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I find myself in a similar situation with mom. When I need to have the hard conversations, it never is the right time: either she's having a particularly good day and doesn't want it to be interrupted with bad thoughts or plans, or it's a bad day and it just aggravates the bad part of the day.

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