just a little share , my worry has been for quite a while what happens to rog if i am ill or not around? he needs full time care so could not be left, kids have lives they all have to work and do all they can but realistically could not provide that level of care and have no room to take him in and he does'nt want that.
i have taken positive action , referred myself and rog to adult social services both been assessed and his needs and level of care is now officially logged, i told the social worker that if the worst happened and i was not on the scene i have advised my rels to ring the on call social worker to put in place all identified needs for him immediately . bless her she was a little taken aback when i refused to put an emergency contact number telling her that my fear was that person would be presumed to be taking over my role. i feel more settled now, she agreed with me although a little unconventional it made thinks very clear!
also have you all heard about ICE numbers in your phone? this is in case of emergency numbers which the emergency services will scroll down to look for if you are ill ? you put them in yourself under the name of ICE, clever i thought, have a great day out there
julie and rog x