Taste buds and Smell

[Cottown]

Hi,

I’m just wondering if anyone with PSP suffers from no smell and the lack of tasting food.

This has been going on for a couple of months now.

Has anyone regained their sense of smell and does the taste come back?

I find this awful as I can't really taste my food and can't smell it either.

Thanks

[Katynick]

my mum had PSP and she never mentioned this so hopefully it will pass?

[Leosta]

Towards the end of his journey my husband said things didn't taste right but I don't think he'd lost his taste completely. It's probably due to something else. Have you had COVID ? I'd talk to your doctor.

Take care 💚

[PineEater]

Hi, As for smell, do you suffer from PSP-P ? Some PDs complain of losing smell. Regarding taste, it could be the effect of taking some medicines. Best wishes

[Jigger1000]

Yes my husband always seems to lose his taste by late afternoon so we make sure we have a cooked meal at lunchtime to reduce his stress about not tasting anything! His smelling sense seems fine

[MullerRice]

Here's what AI says about PSP and loss of smell:"Progressive supranuclear palsy (PSP ) 【patients] typically have a normal sense of smell, but some may have a reduced sense of smell, a condition called hyposmia.

Less common, but some patients may report changes in taste or pain perception.

Some studies have found that olfactory testing can help differentiate PSP from other conditions, such as Parkinson's disease."

I possibly have PSP-CBS and currently don't suffer from loss of smell or taste.

[Sun-flowerwearer]

hello Cotton Wood

I definately know

My husband lost his sense of smell very early on when symptoms first started showing up and remained throughout. As for taste my husband never mentioned it but he became obsessed with sweet food and wanted syrup and sugar added to food and that remained throughout.

[Hidden]

I know Parkinsons can cause loss of sense and smell. Possible you have the PSP-P subtype.

[autex2000]

Hi , I am sorry to say my wife suffered with that problem, and trying to find food that looked interesting and had a proper smell was difficult,

[Lara_2004 in reply to autex2000]

Hi I have had PSP for the past 4 years and prior to that was diagnosed with Parkinson's. I lost my sense of smell very early on - some 7years in total. To not have any sense of smell is very hard and quite depressing. My sense of taste comes and goes, but I can generally taste hot food to varying degrees.

Sorry I can't give you any happy news