On Monday night my brave beautiful stoic mother gave up the battle with this horrendous disease. She had her first fall 12 years ago and we have fought continuously since then , fought for a diagnosis, CHC, Carers at home, hospice respite and finally for this past year she was in an amazing nursing home and I could breathe a little.
PSP takes everything it's unrelenting both for the patient and their Carers. I am devastated she is gone, cross that I am struggling to remember her without the clutches of this illness and relieved she has escaped it.... What a mixed bag of emotions.
To all the families still in this battle my heart goes out to you, to all who have lost someone to it I join your mourning.
Written by
mollymalone
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I'm so sorry for your loss, your mother is now at peace and free from this awful condition. I hope you can soon remember the happy times of the past and once again find a good life after PSP.
I'm so sorry for the loss of your dear Mum, this illness is really dreadful and destroys not only the patient but their families too. She is free now, try to remember her before PSP. Please know I am thinking of you at this very sad time....Pat xx
So sorry Molly,Yes PSP steals everything each time leaving a note I will be back.Get all the photos of your Mum from pre PSP and leave them where you can see them. Des died in July but a healthy happy Des is in my kitchen every morning when I put the kettle on,he raises his glass in the evening when I watch TV and he bumbles by the beach when I get into bed.Thinking of you.Px
This is exactly what I do! Pictures all around!! Smiling happy laughing !!! really helps me erase the horrible PSP images. Just one with the grandkids in summer 2015. He died this last July and he helps me ever minute of the day to go on. Keep hanging on!!
Molly, my sincere condolences. I feel that same way you do. I lost my wife 2.5 months ago and I am still numb and in disbelief. Most of my memories of her are more of the past 2 years, where she looked much like your mum. So sweet and innocent and undeserving of this horrific disease.
My sincere condolences to you on the loss of your mum. No longer has PSP control over her, she is free and now at peace. Take one day at a time to grieve and gradually build up your strength, and those precious memories of happier times will eventually come back. Lots of love, Nanny857 x
So sorry for your lose and that your mom struggled with this awful disease. I hope you find strength in your memories for the good will always outweigh the bad. You will miss her, you will be angry because this horrible disease has taken her from you, you will be warmed with the thought that she no longer suffering and you will be happy with wonderful happy memories of her, it all takes time.
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Mums gone!
At peace 
Psp warrior has left the building 
My darling Mum
