On Monday night my brave beautiful stoic mother gave up the battle with this horrendous disease. She had her first fall 12 years ago and we have fought continuously since then , fought for a diagnosis, CHC, Carers at home, hospice respite and finally for this past year she was in an amazing nursing home and I could breathe a little.
PSP takes everything it's unrelenting both for the patient and their Carers. I am devastated she is gone, cross that I am struggling to remember her without the clutches of this illness and relieved she has escaped it.... What a mixed bag of emotions.
To all the families still in this battle my heart goes out to you, to all who have lost someone to it I join your mourning.