At 17:52 yesterday evenings, my mums wings were finally ready. We could not have hoped for a more peaceful passing. Her family were all around her, she took one final breath and her colour faded away. Every wrinkle and pain disappeared before our eyes. She was truly beautiful, inside and out.
So relieved that she is finally free from PSP. She fought a long battle and won. PSP has had to leave her after invading her body for so long. Her limbs were so lose after such a long time of stiffness. Fly high mum, I love you the world over xxx
Written by
Sarah1972
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I have lots of family here thank you. Last night was strangely so beautiful and peaceful. It’s like she held on so she could prepare us for her passing. Having been asleep for 3 days and listening to her breathing loudly then not breathing it was heartbreaking to hear, so seeing how peaceful she became on her last breath was her final gift to us. I feel such relief that she is free. Me and my daughters are going to see her later today to wash and dress her from her night clothes. We will do her hair and makeup just how she liked to look and then she will be ready for her husband and family to say goodbye xxx
You have my condolences. The passing of a loved one is never easy but sometimes it can feel like a relief inside. May you and your family cherish the many fond memories of you mom.
Thank you Kevin, I honestly could not have asked for a more peaceful passing. I feel such relief, I no longer have to worry about how she is feeling or think about what happens next, worry if she is in pain, feel guilt for not understanding her, worry about not getting to her on time, not knowing how she is feeling, no more infections. In fact PSP can do no more to my beautiful mum, she was just so peaceful when her time came and I got the privilege of seeing all her worries disappear. I have my Dad, brother 2 daughters and mums sister all staying with me and her brother, sister in law and grandson are travelling down today
So sorry for your loss but relieved to hear that it was a calm, peaceful and dignified end to your mom’s PSP battle. Sending you love and hugs at this difficult time
If tears are 💎 we would all be rich beyond our wildest dreams. Each one shed is a memory relived and a moment loved. So catch those close and remember mum as she was before PSP.
Finally mum is at peace in the arms of the angels.
Peace at the end is what we have been praying for, that our dear family members and friends who have suffered so long and so bravely might have the dignity of a gentle farewell and leave-taking from this world. Truly happy to hear that your mother and your family was blessed in this way. Thinking of you, and of her....
Sarah I am so sorry for your loss but happy that you were able to be with her and her passing was so peaceful. She is free from this damned disease. Take care of yourself and your girls now
So sorry to hear of your moms passing . Her wings have raised her up to a better place . A place where she can now be free of pain and PSP. You did your best
Now good memories will get you through this grief . My prayers are with you and your family .
Beautiful words Sarah PSP is a truly devastating disease and only those of us who have or are experiencing it understand how heartbreaking it is to see our loved ones suffer this way I am sorry for your loss but your Mum is at peace now my thoughts are with you xxx
So sorry for your loss but happy that your mum had a peaceful passing and with her family around her. She is free of this terrible illness and now you must rest and take care of yourself. 🙏
How awful for you, I’m so sorry to hear this. Everyone needs support especially in such terrible conditions. If you want to chat please inbox me. Take care of yourself xx
Thanks Sarah,I am going through a tough time at the moment.Following a fall and two months in hospital my wife came home but things got worse.The care package failed,she kept falling,and then my mother died whilst I was struggling with social workers and assessors .She has gone into care for 3 to 4 weeks to give me a break and for her to be assessed for C.H.C.She is a lot younger than the other care home residents ,which means she does not want to socialise and spends most of the time in bed,
Anyway in the meantime I am 4 days into a cold with mum's funeral on Thursday.
I really hope all goes as well as it can at the funeral. Where about in the UK are you and is anyone helping you to complete the form/report for CHC funding?
Thanks Sarah ,I spoke to her neurologist yesterday who will provide a letter of support and the people who will attend her assessment are fully aware of her deterioration over the last few weeks.I live in rural East Anglia which sometimes is a problem for accessing welfare support.But it's great to get support from this forum especially from caring people like yourself.
Extremely sorry for your loss Sarah but everyone has to go one day. Relieved that she left calmly and good to know that all of her closest ones were beside her to say goodbye which I didn't have the opportunity of when my mom passed in August
Anyway, please take care of your dad and yourself now.
Not sure if you are still on this group but I have just been reading your posts while unable to sleep as my mum is currently experiencing the later stages of this awful disease
She has got to the stage where swallowing is difficult despite food being puréed and liquids thickened. She holds it in her mouth but is unable to swallow and then it just dribbles back out.
She refused a PEG early in when she could communicate her wishes and has never been one for any intervention.
Are you able to tell me how much longer I can expect to have with my mum now she’s unable to swallow anything
Hoping for a peaceful end to free her from this awful existence 😢
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Angels Do Have Wings to Fly! 
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