Well I heard this week!The panel of strangers have read the detailed report of the professionals who knew Des and decided to down grade his needs in four of the eleven fields.At the same time they acknowledge it being a progressive disease and have taken over 6 months to do this.They also pointed out that he needed care from people who were familiar with him to interpret his wishes but no suggestion as to how this was always possible,and even if I am there most of the time my days at Chemo I am absent for up to nine hours traveling into Bath and back included.
Well as many will remember he died in July so other people have been waiting for a judgement while they pondered on the deceased. Perhaps I will get the direct funding I have applied for as then I could better ensure Des got care from familiar sympathetic people not the numpties who gave him alternatives to answer and would not understand when you speak in thumbs you need one choice at a time!I have more sympathy for the numpties though than this panel who should be much more able to understand.I will respond to them as maybe I could help them to realise how important their decisions are to people not just to budgets.End of rant. Good luck anyone waiting for CHC. Pauline x