My name is Becky and my sister was diagnosed with PSP in 2014, but she had early symptoms for about a year earlier. She started with vision problems, seeing double and not being able to look up. Her personality changed and became extremely combative and argumentative. Also, she had the blank stare, low, slurred speech and a shuffling gait. She has progressed to falling frequently; 2 broken noses and a concussion, multiple bumps and bruises, shoveling food and choking. She walks with a walker, but will impulsively leave it behind and then falls. We don't have a local neurologist that is familiar with PSP. We have seen one Dr. at UAB in Birmingham and one at Vanderbilt in Nashville. The Dr. at Vanderbilt confirmed she had PSP. But, informed us there wasn't anything he could do. There wasn't enough research being done and the drugs are Parkinson drugs and don't help much if at all. Needless to say, we left feeling angry and totally alone in this battle. So, we went home and I started my research into what PSP was and what we were dealing with. It's depressing and scary as hell, but we are managing and taking each day as it comes and trying not to think of what's to come, yet being prepared.