Hi all we went to the hospital yesterday, not good news George has got a lot worse, doctor spoke about having a peg fitted in the near future, his coughing and the funny noises he makes is all to do with this bloody PSP, I hate this illness so much, he has lost so much weight, it is so sad, he was so tired, he fell asleep while we were with the doctor. One good thing was the doctor was so lovely, she spent nearly 2 hours with us, the proffesor even came in and spoke to us, they were so lovely, doctor said if you need to call us for anything, we are always here for you all.
Also she asked if we would like to meet up with another family who are going through all this, I said yes would be lovely, doctor said she would organise it.
This journey is getting so difficult to live with, and so very sad.
This morning he was so tired he could not get out of bed, when we managed to get him up, we had to feed him, he was to tired to eat. They also said he needed a new wheelchair, so more phone calls on Monday.
Hope you are all ok xxxxxxx