Thank you for your replies to my post on Facebook. I wrote something similar on the PSP site, so if anyone wants to "Like" it, you can do so there. Unfortunately, my site was set up by a family member for a small group of family and friends. I would not want to change that and upset anyone. I hope you understand.
A friend has contacted me about fundraising. He is a Statistician for the NHS. He suggests that as research is so expensive, it would be useful to put pressure on the Government for funding. I could try to set up a petition for this, what do you think? X.