As I sit here in this hotel room right by Ocean Beach. I have read a few of the posts & have come to realize that the one thing we all have in common is TIME. My husband Ray was diagnosed about 3 years with Parkinsons then it was changed to PSP. PSP is a terrible disease and one not to be taken lightly but, I really know that taking care of ME has been a tough thing too. So with work, appointments, physical & mental care it's been a challenge but, my friend said it best, "Take care of YOU. IF you don't do that who will take care of THEM?" So even though, I work and to all those things I thank GOD every day for my family and friends that keep me grounded. Yes, I spend time with RAY (like today we will go for a nice long walk by the beach!) and find time & moments to make with him but, I will try to make time for ME too. I feel guilt at that but, I now know I need to do that.
I cared for both my mom & dad until they passed but, I also had a caregiver come in and help too. Taking care of your loved one is a FULL TIME job (24/7) but, don't forget yourself. I love him to pieces and will truly miss him when he is gone but, I need to re-focus on myself. I find myself in pain and tired and worrisome but, I know to best help Ray, I need to fix me too. Prayers for you all and your families and for me too. ((HUGGz)) Enjoy your slice of life, savor it, life is too short to skimp!