REFUSE TO RELEASE MY HUSBAND

[Auddonz]

Has anyone else had this type of issue? My husband is in a rehab facility and they are refusing to release him for home care. They said he needs more therapy, duh. They claim they know that this disorder is progressive but will not let him go. I have a hospital bed waiting to be delivered and our primary Dr will provide therapy at home. I have been told that if I take him out without AMA, medicare can refuse to pay for any other therapy. Anyone know anything about this?

[easterncedar]

Oh, how maddening! I'm sorry not to have any practical advice, except that perhaps you might see if there might be a long term care ombudsman to help you navigate this? Our state has an agency, some larger hospitals have their own. Your primary care physician should be able to help, can't he? I wouldn't take the facility's word for it about Medicare coverage, particularly if your primary is involved. Hang on! Easterncedar

[Auddonz in reply to easterncedar]

Easternceder, spoke to medicare and they will not pay the bill f I take him out AMA. I am now going to call the facility again to see if they have made a decision. No answer and then will contact an ombudsman. I am so trying to hang on.

[easterncedar in reply to Auddonz]

It seems wrong wrong wrong that the people who are supposed to help are making things so hard. It's easy to be suspicious of their motives. The stories on this site of people who have had to fight to get the services they are supposed to are maddening. You are certainly not alone in this. Recently there have been a couple of people who have been released from the hospital prematurely, ill and weak, and before there was any help in place, and the family has had to fight to keep them in care. It's a frequent refrain: mild-mannered women who feel they have to turn into ferocious screamers to get the attention of the medical establishment. I hope things turn around for you soon. This is not one of those wars that you ever really win, so it's best to try not to burn out on any one battle. Good luck. Be strong. Love and peace, Easterncedar

[Auddonz]

I reported the facility and all of the things they have done. Hope it was enough to have them investigated.

[GenaBenedict]

I HAVE 2 CG'S THAT I PAY THEY LOOK AFTER ME IKE I'M THEIR,FRIEND. MY DAUGHTER IS MY FAMILY CG SHE QUESTIONS EVERY,TIME I TALK ABOUT MY PROBLEMS. SHE'LL ASK ME WHY I'M NOT SWALLOWING MY SPIT. SHE CLAIMS I'M NOT SUPPOSED TO DO THAT.ASHE ORDERS CG'S TO DO STUFF WHILE I'M SITTING LIKE I'M A DUMMY. I HAVE A CLEAR MIND.. MY HOME COUNSLER IS AWARE OF THIS HE SAYS THAT SHE LOVES ME BUT SOMETIME I THINK I'M A BURDEN TO HER.. I DON'T KNOW WHAT TO DO........... GENA

[Lynda57 in reply to GenaBenedict]

Hi Gena,

I too feel like a burden to my family.... and the truth is we are. I find it comes down to their attitude. I have one son who is very abrupt at times when assisting me which makes me feel badly, while at other times he is pleasant, which makes me feel grateful. It is hard for some people to understand that we have consciously think to do the most simplest of things like swallowing or any movement at all. I think they are angry that psp has affected us so much but they need to blame the disease and not us. And we have to learn to be patient while they process this. I am sorry you have to deal with this

[Auddonz]

I think Gena she wants to make sure you are getting the best care she can give you and does love you. I have no one but me to take care of my Don when he comes home. Hopefully some therapy and a nurse 3 hours a week and that is it.

[GenaBenedict in reply to Auddonz]

THIS WEEK I WENT TO CHURCH GARAGE GARAGE SALE. THE LADIES I'VE KNOWN FOR 29 YEARS MADE ME FEEL NORMAL IT WAS A WONDERFULL FEELING ......... WAS TIRING BU WORTH IT............... GENA HANKS FOR ALL YOR GREAT ADVICE...... WE ARE ALL OF US............ A GREAT TEAM...........GENA