I am interested to know how you get a neuro physio or which exercises I could do to help my husband. My husband was diagnosed with PSP/CBD in 2013, but since being admitted to hospital in Norwich in September for 2 weeks returned home unable to walk. No-one would get him out of bed when in hospital as they said he might get up and fall over. Since then I have asked the GP and OT if he can have any physio as he can no longer stand and his left leg is contracting. They say there isn't anyone who can help. He has just returned home from 16 days in the same hospital and yet again no-one would get him out of bed. (The physios would daily get out an elderly gentleman, who was very poorly and sit him in a chair, he died last week!)
My husband was always so keen on keeping fit and used to run 3 miles twice a week, do weight lifting and specific exercises from a book. It is devastating watching him being hoisted from bed to chair and back again.
I'd happily pay for someone to come out to help him.
HI
I A M SORRY THAT YOUR HUSBAND WAS ONCE SO FIT - IM THE SAME BUT HAVE NEVER HAD A NEURO PHYSIO BUT AN NHS ONE AND A PHYSIO FM THE RE- ENABLEMENT TEAM WHO CAME TO THE HOUSE AND GSAV ME EX S FOR MY LEGS MAINLY
I AM NOW USING A WHEELCHAIR INSIDE AND OUT SO MY FALLS ARE A LOT LESS NOW
BUT I T TAKE S ME FOREVER TO GET ANYWHERE IN T HE APARTMENT SAS IT IS A HANDS ON CHAIR
;LOL JILL
Thank you for replying, Jill.
As far as I know there isn't an ordinary NHS Physio available either in our part of Norwich. I would really like to know the types of exercises I could do for my husband to stop his legs and arms from being so stiff.
The carers are now saying I have to buy him some extra large T-shirts as they are worried when trying to get him into his shirts and jumpers as he is so stiff and clutches his hands together, that they might break his fingers or dislocate his shoulder.
He still takes Co-Beneldopa 3 times a day, but that seems to have more bad side effects, (agitation, hallucinations) than positive outcomes now.
He has a tilting wheelchair which he can sit in for a change from his rise recliner chair. It also means a different view for a short while. Sadly, I cannot take him out in it as the chair is so large, I would need a much bigger vehicle than my current Nissan Note.
I just feel so sorry for him, especially with the Spring coming, knowing he won't be able to walk or even go out any more.