I am interested to know how you get a neuro physio or which exercises I could do to help my husband. My husband was diagnosed with PSP/CBD in 2013, but since being admitted to hospital in Norwich in September for 2 weeks returned home unable to walk. No-one would get him out of bed when in hospital as they said he might get up and fall over. Since then I have asked the GP and OT if he can have any physio as he can no longer stand and his left leg is contracting. They say there isn't anyone who can help. He has just returned home from 16 days in the same hospital and yet again no-one would get him out of bed. (The physios would daily get out an elderly gentleman, who was very poorly and sit him in a chair, he died last week!)
My husband was always so keen on keeping fit and used to run 3 miles twice a week, do weight lifting and specific exercises from a book. It is devastating watching him being hoisted from bed to chair and back again.
I'd happily pay for someone to come out to help him.