On Easter Monday Des's brother finally escaped the pain and died from cancer in a hospice where they really took good care of him and the family.Des sees no logic in his death when Des would welcome it.We will go to the funeral on Thursday if nothing changes.
Monday we are to be interviewed for CHC by a new social worker(unfortunately she retires soon) thankfully the DN is an old friend by now.I will hope not to get too emotional but the questions all make me feel I am blaming Des and we all understand PSP needs to answer for his failings.He is quite aggressive now and is trying to maintain control,so I must not attempt to drive him without help, last time he grasped my left hand and I was unable to change gear, so dangerous but he is unaware how dangerous that is.
The local senior mental health have become involved but despite 2 drug trials we are definitely not calmer, we await the 3rd with my fingers crossed.I so hope it does not cause hallucinations Life is hard for the two of us but much harder with others seen only by Des.
Like NannaB we try to find humour and after getting really mucky hands following a "pant" accident I told Des he had farmer cuticles He has always loved puns and I was rewarded by a laugh quite a rarity now.
A strange HCA came one night and after a new wound was dressed told him he could go to ByByes.I would have understood him punching her but he was too tired.
Fingers crossed for me PSP Carer friends
Px