My father is in the latter stages of this dreadful illness (PSP). Of late when he is in his wheelchair, he is bent over, his head touching his knees, and we cannot straighten him. Before now his head has fallen into his food. It is so distressing for us all. Dad is 89 and had PSP for 14 years. The Hospice nurse who calls prefers him out of bed, but some days this isn't possible because of this doubling over. Has anyone experience and advice about this symptom.