I lost my husband on April 5th after a 4 year battle with the horible, cruel disease that is PSP.

[elizabeth57]

My beloved husband Malcolm who very sadly died at home with myself and my 3 daughters by his side. Unfortunately his passing wasnt peaceful or how we were prepared for. He died from bronchul Phneumonia and in his last week he was put on the liverpool care pathway, he was very heavily sedated but on the saturday morning he deteriorated very rapidly. At the end he couldnt swallow at all and the secretions on his chest worsened dramatically. Being on the highest dosage of all medications possible to releive the secretions building up in his chest and nothing worked. My husband was only 65 when he passed, before this he was a very socail and active man until this disease robbed him of evrything, his sight, speech, movement and ability to swallow. He felt very lonely and isolated due to being unable to communicate properly. He was always a very proud man and wanted to die with dignity, and we did all we could to enable that for him. I love and miss him very very much and not a day goes by where i dont think about him and the life we shared together. xxxx

[jillannf6]

HI ELIZABETH

so sorry about he loss of your dear husband- nothing i can say will make any difference except that you are in my thoughts

lol Jill

hug s and xxxx

[dorothy-thompson]

Dear Elizabeth57

I am so sorry for your loss.

Yes it is all so very sad and cruel and it has suddenly struck me, you're right about the isolation and feeling of loneliness. I will remember that the next time I get frustrated with all the demands and think, there but for the grace.

Be kind to yourselves.

Dorothy Thompson

[Sharon637]

I am so very sorry for your loss Elizabeth and sorry to hear it was such an uncomfortable and distressing passing. It won't help at the moment, but later hopefully you can take comfort that you did everything possible and you were all able to be there with him. There are no words to console such a loss, but love and prayers are with you. Thank you also for posting such a beautiful picture, reflecting the man he was and how important his life was. The illness is now over and with time, you will be able to focus on the man and have memories that don't bring such intense pain and heartache when you think of them. Love to you and all your family at this sad time.

[hmfsli]

Dear Elizabeth,

Please accept my sincere condolences for your loss. I pray you will be comforted by memories of happier times.

h

[Hidden]

Dear Elizabeth

Sorry to hear of the loss of your husband at only 65 years of age. May you and your family share fond memories of him which become richer as time goes by. It's a terrible disease, but Malcolm is now at rest. Our prayers are with you.

Tony.

[Etruscan1]

I am very sorry for your loss, elizabeth57. It is such a cruel disease.

[dragonladynaps]

Your story sounds very much like mine. Lost mine the exact same way on the 8th. He was 67. Many good thoughts and prayers your way.

[groovychick]

So sorry to hear this, another angel gone too soon. Just like the way dad went, I wish it could have been more peaceful. May your dear husbands soul rest in peace and now he is free of PSP. In time you will remember all the good things and the way he was before this awful disease took him away. May god give you courage and strength xxxx

[nomansland]

We don,t live in a just world,,we will pray for Malcolm and your family...Rollie

[Heady]

Dear Elizabeth

I send you my love at this terrible time for you and your daughters. This is the final hurdle of this cruel disease and I am sure that the strength you found to get over all the rest, will help you come to terms with your husband's passing. He is finally at peace, may you now find some too! Remember, you did everything possible for husband, now it's time to spend your energy on yourself and your daughters.

Much love

Heady

[daparose]

Hi 0Elizabeth, I am so sorry for your loss and I know how awful you must be feeling. I lost my husband on the 4th December, 2013 to this cruel disease, I to still think about him and miss him everyday. I hope that with time you and your daughters will be able to remember the happy times you had together, please take care of yourselves.

[wifemo]

Hello Elizabeth -

So pleased that you and your three daughters were able to be there with your husband, and may you all be a comfort and support to each other in the next difficult stage, while you are all moving on together.

Thinking of you,

Mo

[2660Carol]

Dear Elizabeth So sorry for your loss of your husband Malcolm I lost my husband Ben Jan 29th 2017 with PSP too Ben was 67 he suffered the same way as your husband did couldn't swallow couldn't talk walk falling needed held up bowel issues and cath issues and extreme anxiety up to the end 5 years like this the last 2 were the worst 10 days before he died he completely stopped eating anything liquidy he seemed in and out of this world he would call me his mothers name MOM I would joke with him and say do I look like your mom but I know she was waiting for him to depart I believe in God and afterlife Ben is giving me many signs he is with me I could write a book I sing to him talk to him and dream of him We were married 45 years this past April 8th We were highschool sweethearts we dated since age 15 just remember the good times thank goodness for those memories thank you for listening Carol2660

[Baytalon]

I am so very sorry for your loss. My husband is in the third year of his fight with PSP, and I know how cruel this disease can be.