My father-in-law died today. He had CBS, not completely or formally diagnosed but has all the issues that we share in this forum for 4 years, started as what it looked as a stroke.
He was very aware of the condition and his worst fear was to die in pain, choking. However, he died slowly and in peace, surrounded by his children.
His swallowing got worst in the last couple of weeks, it was being fed baby purees lately and still struggling. On Thursday he had a mini stroke and things got even worst. He lost completely his speech and ability to walk... but the worst thing was... he couldn't swallow anymore. Not even water.
We knew that he didn't want to come back to hospital, therefore it was a matter of days to start loosing energy and the body to release the spirit.
Thank you all for all the support and sharing all your experiences, they were very insightful and helped us to deal with the condition all this time.
Am so sorry for your loss.This will leave a big void as your FiL has taken up a great deal of your time, thought, effort and emotions!
Take time to grieve his passing with your husband, and to learn to relax and pick up the family threads.
Show your daughter you have time for her again, but try and explain how tired you feel, and that you would love for her to help you get better.
It all takes time! But life can now get back to normal (however that may look in your part of the world!). You just have to give yourself time!
In time, you will appreciate what you have learned from your insight into the frailties and complexities that are part of this awful disease. I found it helped me to stick around here for a while and help others through their rough journey.
I’m so very sorry for your loss. My husband passed in February of this year from PSP.......I pray that you and your family hold dear the good memories in your heart.
I am so sorry to hear that your father in law has passed away. May he rest in peace, finally free from this evil disease.I totally agree with what Jen has said. It still is one day at a time, for the foreseeable future, don’t fight that, just accept it for what it is, grief. We all grieve differently and that’s alright as well.
Sending a big hug and much love to you and all the family.
Thinking of you and the family at this sad and difficult time. Giving thanks that your father in law passed away peacefully with his family around him and knowing how much he was loved. He is now whole again, free from pain and this evil disease.
I hope you may be comforted and consoled in your grief knowing that he is no longer struggling or suffering. Sending a big hug to the whole family. Purrlie
I'm so sorry for your loss, my husband passed away peacefully 5 weeks ago from what we think was PSP after a long 7 year battle. He would have been 71 next week. it's all very raw at the minute & I miss him terribly , but had a lot of support from this Forum which made me feel I was not on this journey alone. Take care x
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I lost my husband on April 5th after a 4 year battle with the horible, cruel disease that is PSP.
Goodbye to Andrea Birke
My David struggles no more
A very stressful day!
Can PSP progress quite fast or very quickly
