Dad's operation : Hi. I don't know if you... - PSP Association

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Dad's operation

lindsey48 profile image
10 Replies

Hi. I don't know if you remember me but mum has PSP and dad was waiting for heart valve replacement surgery. We just heard yesterday that dad's operation s to be next Thursday, so are now desperately trying to find mum some respite care whilst dad is in hospital and for a couple of weeks afterwards. I'm feeling pretty stressed and guilty as I know she doesn't want to go, but I have to prioritise my dad's health at the moment

Lindsey

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lindsey48
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10 Replies
jillannf6 profile image
jillannf6

Hil Lindsey

You r right to,prioritise one parents help,wh

En required -i think your mum will have to go into respite care accept thats for her safety as well

lol jill

I recommend Charing. They have a lot of branches and do residential as well as nursing. If your dad needs respite too they would arrange the rooms for them. Best wishes and I am glad your dads health needs are being addressed. X

Baddie profile image
Baddie

Hi I don't no where you live but try your local hospice they are suppose to take people in for respite up to 2 weeks if they have a bed do you have continual health care at home if you do they should sort this out for you good luck

jillannf6 profile image
jillannf6

Yes I k agree with what the other s have said

You need to,get,some respite care sorted for,your mum and dad

Lol,jill

quickgel profile image
quickgel

Hi Lindsy, Without knowing your local circumstances It's difficult to offer positive help but my experience was that Social Services and the local Hospice were far more help than the GP/NHS. In fact my daughter found an excellent local Hospice via the internet of which the GP was totally unaware. I know others have completely the opposite experience, it seems a bit of post code lottery, it is after all run by human beings and the help available constrained by budgets. I found Hospice staff were very well informed and knew the best local individuals to contact within the social services system and also had many links with other helpful services. I do hope you manage to get the help you need and begin to feel less stressed, also that your Dad's operation goes well, you need to keep fit to be a carer!!!

Kind regards., Jerry.

SharonAB profile image
SharonAB

Dear Lindsey,

Things are moving thick and fast for you & family. Sometimes here, when the hospital social workers speak on behalf of family there is a greater change of nursing care/respite accommodation - possible in UK as well ???

Regards,

Alana - Western Australia

littlesupermum profile image
littlesupermum

hi my

littlesupermum profile image
littlesupermum

sorry meant to say hi my name is Rachel. my mum has cbd we're in ire. mum's had respite in local hospice and also attends their wonderful day care on a Thursday . hospice nurse has justgot us increase in help hrs too. mum's ok but recently had big decline in cognitive function and mobility. i believe the earlier the hospice is involved the better.x good luck to ur dad mine had cardiac surgery 5 yrs ago

lindsey48 profile image
lindsey48

Thanks. We looked at a nursing home today. It looks lovely. The hospice has a really long waiting list x

easterncedar profile image
easterncedar

Just want to wish you the best in all you and your family are going through. I hope your father's surgery is successful and his recovery is quick, and that you find the respite care for your mother. I wish you strength!

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