Hi, My dad has PSP. He is very unsteady on his feet and walks with a frame but he does fall over a lot. My dad Ian lives in a town called East Grinstead about 20 min from Gatwick airport. The only support group that we can find near by is one at the Queen Victoria Hospital but it is a Parkinson's support group. He went this month and he fell over. My mum was told that he fell into another person and because of that they are concerned for the other members of the group! They have now informed my mum that after a group discussion they feel it is best for my dad NOT TO attend any more meetings! How dare they! My mum was not happy at all and aired her views, to be then told well humm ok maybe if you came and stay with him then it might be ok. This is once a month that my mum gets a break from looking after my dad and now they are saying my mum has to attend the meeting just so my dad can go! If you steady my dad he is fine on his feet, so why can't they just help him to the toilet etc???? Are they telling me people with Parkinson's don't fall over. I am so angry.
So if you do know of a PSP support group that is near, please could you let me know. Mum said they have made him out to be a naughty little school boy!!!!