While Ive been away on holiday my mum has been struggling to open her mouth wide enough to eat ( liquidized diet) as her jaw has become very stiff, some days are better than others but its getting to be quite a problem. As I couldn't get in touch with neurologist I called the PSP helpline and this medication and one other was recommended for PSP, must say they were incredibly helpful. Going into to see mums GP without their advise I think I wouldn't have got the correct type of drug. As thought it is making mum very tired but hoping that side effect will pass shortly, too early to tell yet if its helping to relax her jaw. Mum made her Advance Decision this year which includes not wanting to be peg fed.
As always any thoughts would be great.
Sending you all hugs