Hello there, it's been a long time since I have posted. Mum is in to her 6-7th year of PSP
Mum has totally lost the ability to speak but in stead she is constantly shouting just noise to speak. This is very upsetting as it's obvious that she wants something and yet it's so hard to find out what. Has anyone any tips etc as of ways you all communicate with your loved ones? Please help .
Mum is also experiencing a lot more pain , more than she used to, is this normal?
Her hands ave become closed and has guards on now to keep them open, which she wears 6 hrs a day, which help.
She is als experiencing symptoms of CPD which mum only has PSP , she has developed an "alien limb" but apparently people can develop a combination of both? Has anyone experienced this?
It's so hard seeing mum like this and sometimes think please god take her, please don't let her suffer no more, I just wish she could talk to me and tell me what she feels, wants etc
Love you mum x