Hi, I’m not sure if anyone is still using this site as I have noticed posts were 4 years ago but I am desperate to talk to people that have had a loved one with PSP. My mum was diagnosed about 4 years ago with Parkinson’s and about a month ago Mum was admitted to hospital and the neurologist looked straight at her and said you don’t have Parkinson’s you have PSP.
I am now trying to get my ahead around this awful disease. Mum is in rehab at the moment she had good days and bad. Mum is vey stary and very softly spoken, she at times needs assistance eating but can not be alone to walk shower or anything.
Rehab have advised Mum needs 24x7 care and that it will be to hard for me cause within months Mum will get dramatically worse.
I would love to chat to anyone that has been through this before