drugs for incontinence

[gp1943]

Has anyone any experience of drugs that restrict the production of urine. My husband removes his incontinence pad constantly during the night. We tried Conveen sheaths which he managed during the day but again at night he pulled the sheath off. The last time this resulted in him removing some skin from his penis which started bleeding. We have given up on them. I check during the night if the pad is still on or needs changed but every morning the pad is on the floor and the bed is soaked. It means he has been lying on a wet sheet and the bed has to be changed every day. He was always in the habit of sleeping naked and I don't think he can tollerate anything restricting him.

[jillannf6]

hi gp

i have etaken ocybutanin and am now on velo.....

to prevent haafing o go do often furing the nihght and dayh

but i am not at the stage your husbnad is at . yet

lol \jill

try and keep smililng i knwo it is difficult as a carer

i hav e PSP

HUGS

[gp1943 in reply to jillannf6]

Jill, thanks for your info. District Nurse phoned to see how we were managing and I mentioned medication, She said yes it was an option. We are seeing a urologist in 4 weeks and I will ask about it then. We originally went to the urologist as my husband had difficulty passing urine and now we are going to ask for something to restrict it!

I think you are wonderful Jill. No matter how hard it is for the carer it'snothing to what the sufferer has to put up with. Take care of yourself1

[jillannf6 in reply to jillannf6]

hi again gp

the latest drug is called VESOCARE#- BUT the incontinence nurse tells meit can take 3 months to have its full effect (?)

i am having reall bowel probs - gettign constipated and the piles makign it v painful to go

;lol jill

and a smile

[maggieh]

My husband was also put on Oxybutynin which did help for a little while, then he also had the same habits, i.e. pulling off his Conveen during the night and making himself bleed. When he had to go back to wearing pads he would ALSO pull them off during the night and would drop them on the floor resulting in his bed being soaked two or three times. Luckily for me when he had reached this stage he had become a resident in a specialised neurological nursing home in Nottinghamshire so thank goodness I did not have the problem of dealing with all the wet sheets.

Sadly it's often a common problem as the PSP progresses and I guess there's not an awful lot that can be done. Just wish I could give you more advice as it does mean such a lot of work for those who care for their loved ones at home. As my husband slowly deteriotated, at least he became less agitated at night and the throwing off of his pads seemed to ease up. It seems just another stage they seem to go through.

Good luck my thoughts are with you.

Love Maggie x

[gp1943]

Thanks for your reply Maggie. The constant changing of wet sheets is wearing and I have stopped changing the sheet during the night as it is usually wet again. I put a Pampers bed mat on top of the sheet which helps to a certain extent if it stays in place and I replace this during the night. If he is restless the mat usually slips and he misses it. We are seeing the urologist next month and I will ask about the Oxybutynin. Thanks again for taking the trouble to reply.

[judy1962]

Hi GP,

My heart goes out to you. I know how restless the PSP patients can get. My poor husband was always pulling everything off until he couldn't do even that anymore. I just made sure that I checked on him every three hours and I usually could get a new garmet or catheter on him before he wet the bed. I would not try to restrict his urine flow with medications as these patients have problems with UTIs and they get very disorientated and become very ill. I would however restrict his fluid intake by 6:00 pm. I always woke my husband up early and started giving him his fluids as he was much better in the days than in the evening and nights when it came to leaving his garments and catheters alone. Good luck and I hope this helps.

Take care of yourself,

Judy

[gp1943 in reply to judy1962]

Hi Judy, thanks for your input. I usually get up early and leave my husband asleep so that I can have a leisurely breakfast in peace. I'm sorry if that sounds awful but its the only time I get to myself. He certainly is better during the day so I will give getting him up earlier a try. He has Horlicks about 8 pm but he would certainly take it earlier as we have our evening meal early. Again many thanks.

[judy1962]

I totally understand and you NEED to care for yourself! I know how demanding this can all be and there were days that I thought I might just die. Eventually Dave got a feeding tube and it was not as difficult to get fluids into him. Your husband is very fortunate to have you at his side!

[Honnie1]

Try adult oneze and adult diapers cover

[Uscarol in reply to Honnie1]

My husband one morning said he was becoming incontinent..ended up being not so much then but now he absolutely needs the pull ups for overnight.