Will SE end?: I finished 9 weeks of RT... - Prostate Cancer N...

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Will SE end?

Eadgbe profile image
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I finished 9 weeks of RT 10 days ago. Stage 2-3 pc. On monthly Eligard.

The SE have been on/off diarrhea, managed by immodium and on/off urination problems. I am recording the times of my nightime trips to monitor my sleep cycles. I get up about 6 times per night to pee - about every 100 minutes. I can get back to sleep so I accumulate 6-8 hrs. of sleep but must nap during the day.

The nightime urination is challenging because I must use my abdominal muscles to start a stream. This causes my penis to become semi-hard from the forced blood flow - especially if I sit down, which makes it harder to pee. However in the morning, when I finally get out of bed and walk around a bit my penis is flaccid and urination comes more naturally with a longer stream & without too much force.

I was taking tamsulosin morning and night but I took Tall Allen's advice to take 2 tamsulosin before bed. This seems to help slightly - decreasing my nightime trips 20-30% so far (from 6 to 4 or 5).

My question to the group is: is there hope that these north korean prison camp side effects will end without added surgery? What is some of your experiences with this?

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Eadgbe profile image
Eadgbe
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Tall_Allen profile image
Tall_Allen

prostatecancer.news/2018/10...

conbio profile image
conbio

Yea, it's a pain. With EBRT and then Brachy, it took me a good 3 months for things to settle down near normal. I was doing the same, taking my 2 tamulosin doses at night. That and no fluids after 6 pm helped somewhat.

Not fun, but it is temporary. Hang in there.

Eadgbe profile image
Eadgbe in reply to conbio

Thanks for the hope. My journey started with sepsis from a transrectal biopsy, so I wonder if that didn't screw things up before the radiation. Glad to hear its "normal."

Don717 profile image
Don717 in reply to conbio

Yeah, no eating or fluids after 6pm. I used Alfuzosin...don't know if there is any advantage switching. Obviously, ask the doc. Your sleep routine sounds exactly like mine used to. For 4 years I never slept more than an hour and 45min a clip. Good luck sir!

Mike404 profile image
Mike404

it took nine months for my nocturia to resolve. Hang in there. Mine went away. But I’ve stayed on the tamsulosin. I notice a weaker stream when I dial it back.

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