impossible decision to make

[Crossing41]

I’m a 41 yr. Survivor of cervical cancer suffering from Radiation proctitis and a colon stricture. I have been told that a “tricky and risky” colostomy and proctectomy are my only options and that they are “elective” surgeries. I am almost 70 yrs old and fear that these surgeries will cause me to lose a level of independence and more complications. Research states there is a high percentage of co- morbidity and mortality in the surgery. I don’t know how to make such an impossible decision and live with the outcomes/implications. Have any of you found alternative ways to manage strictures and bleeding with major surgery? Thanks!

[accidentalcarnivore]

So sorry for your suffering. I’m 16 yrs post tx for cervical cancer. I have severe BAM and frequent small bowel obstructions. I too have avoided surgery due to high risk of complications. I manage with severe dietary restrictions. Fasting. Yoga and exercise. Difficult but doable. Takes extreme resolve and commitment.

[BlueButterfly4 in reply to accidentalcarnivore]

I absolutely agree with accidentalcarnivore. My Consultant has advised against surgery as the damage to my bowel is so extensive and therefore the surgery would just be to dangerous. I too restrict my diet, try to walk a little every day and do intermittent fasting.

[jude-the-obscure Community Pioneer]

You are all so brave and resourceful! I cannot offer much advice as we all have to manage in our own ways. I now have the support of the Late effects clinic in Bristol and Zoe is really helpful. A listening ear often puts a different perspective on things and helps us move forward. I am 80 next birthday and would not dream of contemplating surgery. The complications are not worth thinking about! Thankfully I manage with diet and occasional resort to Loperamide and Buscopan in addition to a whole set of other medications!

Best wishes for you future plans

Jude

[maddie_1234]

Hi, It's so difficult when the so called 'Experts' put the decision back on us. This shouldn't be the case at all. I have the same symptoms as you & have been told by my Consultant that a Colostomy is out of the question as the damage to the nerves in the Large Bowel is too extensive & I would actually end up worse off. My treatment, A Low Residue Diet ie. No Fibre whatsoever & Laxatives every Morning to avoid the risk of Impaction or more seriously Obstruction. Yes. I wear my 'Nappy' as I call it 24/7 but I know it's the only option I have. Good luck in making your decision.

[Crossing41]

thank you for your honest response and God bless you too. I have been so distressed about even trying to make an informed decision. It’s nice to know I am not alone in this journey.