Toccillizumab???? : Yesterday was my... - Positive Wellbein...

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Toccillizumab????

28maggie11 profile image
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Yesterday was my 15th injection. I have been thinking this drug was working as only on it and coping. This last week however shoulders and neck really sore and I had to increase painkillers. Seeing nurse next week. Can anyone give me hope that it will still work? I was so hopeful. No side effects and painless to inject.

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28maggie11
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Hi 28maggie11, I was unfamiliar with this drug so looked it up. It has a fascinating name that sounds almost like a magic spell and it's a shame that it seems to have stopped working its magic for you. I'm not sure why you are using this, but I see that it's often used for treating rheumatoid arthritis.I hope that it isn't working less effectively now, as it sounds as if it was of real benefit to you. I'm sure your nurse will be able to give you a better assessment as to whether this is a blip or if it is now less effective for you. Sorry I can't be of better help! 🙏

springcross profile image
springcross

As you mentioned Tocs I had a look and saw that you normally post in the NRAS forum. You may have ended up here by mistake - just thought I'd mention it in case you had, x

28maggie11 profile image
28maggie11 in reply to springcross

Ty I am a numpty

springcross profile image
springcross in reply to 28maggie11

No you're not! 😊

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